A look at the past. A vision of the future. - Rady Children's Hospital

2008 Annual Report Edition

A look at the past. A vision of the future.

Our patients really tell our story. Meet children like Ty and Austin inside.

Rady Children’s Magazine is published twice a year for the friends of Rady Children’s Hospital-San Diego. Its goals are to provide information on past and upcoming events of interest, to update readers on significant news, programs and research, and to show how community support and involvement are making a difference in the lives of the children and families in our care. We value your comments and suggestions — (858) 966-4955.

Chair, Board of Trustees John G. Davies, Esq. President & Chief Executive Officer Kathleen A. Sellick. Chief, Medical Staff Alvin H. Faierman, M.D. Rady Children’s Magazine is published by the Creative Services Department at Rady Children’s Hospital-San Diego, 3020 Children’s Way, San Diego, CA 92123-4282

What’s Inside

8

1 Why We Do What We Do… A Message from the 2008 Board Chairs 3 The Heart of the Hospital A Message from the CEO 4 Volunteer Leadership 6 2008 Financial Report 9 The Year in Review 19 Medical Excellence: Autism 23 Medical Excellence: Dermatology 25 Medical Excellence: Heart Institute 27 Medical Excellence: Hematology/Oncology 29 Medical Excellence: Orthopedics 32 Better Care Through Research 34 Looking Ahead

10

37

INSERT Rady Children’s Directory of Care and Services PHILANTHROPY AND VOLUNTEERISM 35 36 39 42 45 46 47 51 52 53 55 69

44

Rady Children’s Hospital Foundation: Financial Overview Reaching New Heights Children’s Circle of Care Rady Children’s Legacy Circle Corporate Support Community Involvement Rady Children’s Miracle Makers Rady Children’s Hospital Auxiliary Charity Ball Volunteer Services Our Most Generous Donors Calendar of Events

Editorial Board: David B. Gillig, FAHP Senior Vice President & Executive Director, Rady Children’s Hospital Foundation Judy Minich Editor Sybilla Green Dorros Ben Metcalf Judy Minich Lisa Petrillo Joyce Prichett Diane Yohe Writers Susan Bailey Creative Services Team Leader Mike Carnevale Designer David Hebble Bob Ross Photographers

Visit our website at: www.rchsd.org

2008 Annual Report Edition

A look at the past. A vision of the future.

Our patients really tell our story. Meet children like Ty and Austin inside.

58 Throughout this Annual Report, look for the Did You Know? symbol. It offers a quick look at some of our most noteworthy achievements and year-end facts.

On the cover: Ty Tuminello was treated at Rady Children’s for a rare genetic disorder. Learn more about Ty’s recovery on page 44.

Why We Do What We Do A Message from the 2008 Board Chairs

T

his Annual Report does what an Annual Report should do: It reports on our 2008 fiscal year (July 1, 2007-June 30, 2008). It was, in fact, an amazing year for Rady Children’s Hospital-San Diego. Rady Children’s achieved its best operating performance ever in fiscal year 2008. We have come into these challenging economic times with a strong financial foundation and solid plans for growth. Throughout these pages, you’ll review our fiscal performance (pages 6-7), see highlights from throughout the year (pages 9-17), and celebrate the power of philanthropy and volunteerism on nearly every page. You’ll also get an insider’s glimpse of our new Patient Care Pavilion in progress (pages 36-37). But we know that our accountability extends beyond our responsibility to report to our donors and our community. Our real accountability is to the children and families who come to us every day for care. That’s why the faces of these children really take center stage in this report. We hope that the facts will inform you. We know that the patient stories will inspire you. Thank you for all you do.

John G. Davies, Esq.

James F. Vargas

Chair Rady Children’s Hospital and Health Center Rady Children’s Hospital-San Diego

Chair Rady Children’s Hospital Foundation

OURMISSION To restore, sustain and enhance the health and developmental potential of children through excellence in care, education, research and advocacy.

OURVISION We will be a leader, recognized nationally and internationally, for excellence in patient care, education, research and advocacy.

Rady Children’s Magazine 1

In his nearly three-year battle against Acute Lymphoblastic Leukemia (ALL), 12-year-old Austin Gatus has dealt with chemotherapy and severe complications. He has had seven surgeries and spent months at a time in a hospital bed at Rady Children’s. He still has a long road ahead of him, including another year of chemotherapy, but his life should be relatively normal when his treatment ends. Austin touches the hearts of everyone he meets, even performing with Kenny G at the Children’s Circle of Care and Miracle Makers Fall Receptions.

Hi Everyone, October 8, 2008

2 Rady Children’s Magazine

Rady Children's has truly been the core of Austi forever grateful n's care. We ar to all the docto e rs and staff for Austin's needs being there for and giving him the be st possible chan his life-threatenin ces of beating g illness. As yo u know, it has home with Austi been our second n living there for ma ny months and being in and ou continually still t of the hospita l. I will never for quick thinking an get the Hospita d dedication wh l's en Austin was in cri ICU in June 20 tical condition in 06 and the unex pected major su as well. Rady Ch rgeries that follow ildren's dedicate ed, d doctors and Blood Bank do staff and the SD nors saved his life numerous tim es. Thankfully, Austi n is doing so mu ch better… As still ride the rolle you all know, we r coaster, but, thankfully, the more tolerable. bumps have be Austin still has en under a year to He has been ta go of treatment king continual left. or al chemo daily monthly chemo , tons of meds injections since and April 2006 (so will be 3 1/2 ye when he is done ars of treatment it for leukemia). Thank you ever yone for all your continued pray for all your cons ers for Austin ideration and su and pport for our fa appreciate all yo mily. We truly ur thoughtfulne ss and love. Hugs, Smiles an d "Godwinks" to all, Eva (Austin’s mo m)

The Heart of the Hospital A Message from the CEO Just a few months ago, I met a young man – and I heard him tell his story – and I saw that he forever changed the people he met. Pretty impressive for a 12-year-old! When Austin Gatus and his family share their story (see page 2), people truly understand that Rady Children’s commitment to research, treatment and care has a real impact on the lives of children: Real lives of real kids who will grow up to make a difference in this world. I believe that his optimism and courage epitomize everything that is important to us to achieve as an institution. We must expand, as to never turn a child away because of lack of space. We must commit to research so every child has access to the latest and most effective treatments. We offer comprehensive medical and family care to all who come to us; this is our covenant with our community. This is our promise to you. Children like Austin – in fact, EVERY child who needs us – are at the heart of our Hospital. Your support keeps that heartbeat strong. Thank you for continued compassion and generosity.

With Warm Regards,

Kathleen A. Sellick President and Chief Executive Officer

During fiscal year 2008, Rady Children’s treated 14,354 children as inpatients and recorded 215,542 visits to our outpatient and specialty clinics.

Rady Children’s Magazine 3

Rady Children’s Hospital and Health Center Rady Children’s Hospital-San Diego Board of Trustees 2008 Trustees

2008 Ex-Officio with Vote

John G. Davies, Esq. (Chair) Attorney Allen, Matkins, Leck, Gamble & Mallory

David A. Brenner, M.D. Vice Chancellor and Dean, School of Medicine University of California, San Diego

Kurt Benirschke, M.D. Professor Emeritus of Pathology & Reproductive Medicine University of California, San Diego

Alvin H. Faierman, M.D. Chief of Staff Rady Children’s Hospital-San Diego

Margareta E. Norton Sr. Vice President and COO Rady Children’s Hospital and Health Center

Penny A. Dokmo (Vice Chair) Civic Leader

Marye Anne Fox, Ph.D. Chancellor University of California, San Diego

Marjorie Peck, R.N., Ph.D. Designated Nurse Executive Rady Children’s Hospital-San Diego

John M. Gilchrist, Jr. Partner The Corti Gilchrist Partnership

William H. Gurtner Vice President- Clinical Services Department University of California

Cathy C. Polk Civic Leader

David F. Hale Chairman Hale BioPharma Ventures, LLC

Gail R. Knight, M.D. Medical Staff Member-at-Large Rady Children’s Hospital-San Diego

Lucy L. Killea, Ph.D. Civic Leader

James F. Vargas (2008 Chair, Rady Children’s Hospital Foundation) Vice President, Chief Human Resources Officer Copley Newspapers, Inc

Catherine J. Mackey, Ph.D. Sr. Vice President Pfizer Global Research & Development (PGRD) Harry M. Rady CEO Rady Asset Management Theodore D. Roth Managing Director Roth Capital Partners Scott N. Wolfe, Esq. Partner-in-Charge Latham & Watkins

2008 Ex-Officio (Non-voting) Gabriel G. Haddad, M.D. Physician-in-Chief Rady Children’s Hospital-San Diego Chair, Department of Pediatrics University of California, San Diego Herbert C. Kimmons, M.D. President Children’s Specialists of San Diego

Anthony E. Magit, M.D. Chief of Staff Elect Rady Children’s Hospital-San Diego

Kathleen A. Sellick President & CEO Rady Children’s Hospital and Health Center

2008 Officers John G. Davies, Esq., Chair Penny A. Dokmo, Vice Chair Kathleen A. Sellick, President & CEO Margareta E. Norton, Sr. Vice President & Secretary Roger G. Roux, Treasurer, Sr. Vice President & CFO David B. Gillig, Sr. Vice President & Executive Director, Rady Children’s Hospital Foundation Irvin A. Kaufman, M.D., Sr. Vice President & CMO Belinda Santos, Assistant Secretary

Leonard M. Kornreich, M.D. President Emeritus Children’s Primary Care Medical Group

Last year, a total of 20,454 surgeries were performed in the Warren Surgical Suites. That averages more than 76 surgeries every day. Among the surgeries were 476 neurosurgeries, 14 percent of which involved brain tumors.

4 Rady Children’s Magazine

Rady Children's Hospital Foundation Board of Trustees 2008 James F. Vargas, Chair Vice President and Chief Human Resources Officer Copley Newspapers, Inc.

Carlee Harmonson Senior Vice President Personal Trust Union Bank of California

Trish L. Alessio Civic Leader

Ronald D. Harper, Sr. President Harper Construction, Inc.

Marla B. Black Senior V.P. and Division Manager Union Bank of California Betsy Boaz Civic Leader Julie Bronstein Civic Leader

Nancy G. Henderson, Esq. Partner Henderson, Caverly, Pum & Charney Paul J. Hering CEO Barney & Barney

Barbara J. Brown Civic Leader

A. George Kavner, Ph.D. Chairman OTC Holdings, LLC

Edgar D. Canada, M.D. Pediatric Anesthesiologist Rady Children’s Hospital-San Diego

Doug Holmes President and CEO Holmes Land Development Corporation

Daniel T. Carter, C.P.A. Consultant

Richard M. Libenson Director COSTCO Wholesale

Richard Chen President & CEO Paxanic Mary A. Crowley Healthcare Advocate Darlyn Davenport Civic Leader John G. Davies, Esq. Attorney Allen, Matkins, Leck, Gamble & Mallory Alison Gildred Civic Leader David B. Gillig, FAHP Sr. Vice President & Executive Director Rady Children’s Hospital Foundation Mark A. Grant Channel 4 Padres Broadcaster Cox Communications, San Diego William R. Hamlin, Jr. Executive Vice President Ayres Advisors

Scott J. Mubarak, M.D. Director of Orthopedic Institute Rady Children’s Hospital-San Diego Craig Nichols Vice President & General Manager Channel 4 San Diego James E. Olson, CLU, ChFC Senior Agent Northwestern Mutual Financial Network Michael P. Peckham Partner SENTRE Partners, Inc.

Kathleen A. Sellick President and CEO Rady Children’s Hospital-San Diego Phyllis Snyder Civic Leader Chris F. Tresse Principal Bernstein Global Wealth Management Stacey Valencia Civic Leader Angela Wachtmann 2007-2008 President Rady Children’s Hospital Auxiliary Ray Warren General Manager San Diego Marriott Hotel & Marina James W. Weipert Senior Vice President San Diego National Bank Lisa Wilcox-Cassidy President and Co-Founder Youreeeka! Jill N. Young Civic Leader Anne Zouvas Civic Leader

Honorary Trustees Jean E. Hahn Hardy Civic Leader and Philanthropist Paul D. Harter Philanthropist

Matthew A. Peterson, Esq. Partner Peterson & Price

Joyce F. Klein Philanthropist

Cathy C. Polk Civic Leader

Joan Waitt Philanthropist

Sally L. Manchester Ricchiuti Civic Leader William B. Sailer, Esq. Vice President, Legal Counsel QUALCOMM, Inc. Daniel J. Schreiber President Granite Financial Group, Inc.

Rady Children’s Magazine 5

2008 Financial Report

R

ady Children’s achieved its best operating performance ever in fiscal year 2008. With an operating margin of 6.6 percent, this performance met and exceeded financial targets set for the year. As a not-for-profit organization, Rady Children’s re-invests income generated into patient care delivery and other programs to advance its mission. The number of patients admitted to the Hospital increased by nearly 5 percent in fiscal year 2008 to the highest level ever, and overall volume grew by 3 percent. Philanthropy and investment income contribute to overall financial performance. Contributions of $17.7 million in 2008 will help make possible the expansion of the Rady Children’s campus to care for the children of our community. Investment performance suffered in 2008, which is reflective of the overall tumultuous conditions in the securities markets. Strong financial performance is essential to facilitate continued investments in patient care, research, information technology and facilities, to strengthen the organization’s balance sheet, and to position Rady Children’s to address economic challenges that arise.

Income Statement years ended June 30, 2008 and 2007 (amounts in thousands of dollars) For fiscal years 2008 and 2007

2008

2007

Sources of revenue to deliver quality healthcare services: Revenue for inpatient and outpatient healthcare services provided:

$403,730

$358,953

Since we provide care to uninsured, low-income patients and families unable to pay their full bill, we did not collect:

(20,367)

(19,184)

Additional revenue from other sources, including research grants, restricted contributions, management of physician practices and interest received on our reserved funds:

65, 979

104,377

Capitation revenue:

33,609

34,220

Unrestricted contributions from our friends in the community who understand and support our mission to care for children:

6,982

12,115

$489,933

$490,481

Uses of our revenue: Salaries and benefits for our clinical, professional and support staffs:

238,709

216,556

Operating supplies and services:

147,709

137,574

Professional fees and other expenses:

68,085

51,450

Depreciation and interest on plant and equipment:

18,681

17,064

Provision for future programs and capital needs:

16,749

67,837

$489,933

$490,481

Total revenue available to care for children:

Total uses of revenue: 6 Rady Children’s Magazine

Balance Sheets as of June 30, 2008 and 2007 (amounts in thousands of dollars) Assets

2008

2007

Cash on hand

$22,951

$680

Amounts owed by insurance companies, government agencies, patients and others

69,706

73,793

6,509

5,718

Property, plant and equipment

199,455

155,390

Investments to support patient care, research and education activities and to address capital needs

545,137

421,334

44,517

50,407

Total assets, the financial base to provide patient care

$888,275

$707,322

Liabilities

2008

Amounts owed to vendors, employees and others

469,127

311,810

The difference between what we own (our assets) and what we owe (our liabilities), representing the community's interest

419,148

395,512

Our liabilities, plus the community's interest, equals our total assets

$888,275

$707,322

Inventory on hand to meet the needs of our patients

Other assets

2007

Community Benefit Rady Children’s is committed to improve the health status of the community. Through providing a variety of programs that address the top health concerns of the community, Rady Children’s provided $61.8 million in quantifiable community benefit services in 2008. The following table summarizes estimated costs in providing to the community medical care services and other benefits for vulnerable population; community health services and benefits for the broader community; and health research, education and training.

2008

2007

Services provided to those in need Unpaid costs of public programs Medi-Cal Charity care Other benefits for vulnerable population Total quantifiable benefit to those in need

$39,536 5,676 6,729 $51,941

$44,955 2,229 6,087 $53,271

Other benefits Benefits for the broader community and research and education Total community benefit

9,897 $61,838

8,401 $61,672

Rady Children’s provides a Financial Assistance Program to the families of patients who cannot afford to pay for medically necessary healthcare and meet certain Financial Assistance Program criteria. Charity care includes services provided to patients who met the Program criteria. Rady Children’s Magazine 7

Eleven-year-old Hannah Fulston was born with Down syndrome. She has had many medical challenges associated with Down syndrome, including heart and lung problems and developmental delays. She had cardiac surgery when she was 8 months old. Hannah’s mother had to quit her job to coordinate Hannah’s care. Today, Hannah, who now attends fifth grade, is a very active little girl. She has many friends at school, played for three seasons in a Miracle League Baseball team and loves to swim. 8 Rady Children’s Magazine

The Year in Review A look back at the highlights of fiscal year 2008. New Research Partnership In July 2007, Rady Children’s, the University of California, San Diego and St. Jude Children’s Research Hospital began a collaborative alliance to expand critical research in childhood cancers and provide children in San Diego with access to clinical trials sponsored by St. Jude, an institution known worldwide for cancer research.

WELCOME Robert Mak, M.D., Ph.D., Division Chief, Nephrology

“This alliance provides a unique opportunity for us to not only continue with the work we are doing here in San Diego, but also expand it with the addition of St. Jude’s innovative therapies and unique studies,” says Dr. William Roberts, director of Hematology/Oncology at Rady Children’s.

New Down Syndrome Care Center A collaboration between DS Action and Rady Children’s led to the opening of the Down Syndrome Center at Rady Children’s. With the only comprehensive, multidisciplinary Down syndrome clinic in Southern California, Rady Children’s continues to position itself as an international leader in pediatric care and specialty services. Down syndrome is the most common genetic cause of cognitive and developmental disabilities, occurring in about 1 in 800 births. For more about DS Action, please see page 46.

Special Gifts:

$100,000 from Paige and Joe Bezdek to benefit the Neonatal Intensive Care Unit in the new Patient Care Pavilion.

Special Gifts:

$150,000 from Friends of Scott to benefit the Wellness Center and Bone Marrow Transplant Playroom in the new Patient Care Pavilion.

Congratulations to Gabrielle Cerda, M.D., 2007 American Academy of Child and Adolescent Psychiatry winner of the National Norbert and Charlotte Rieger Service Program Award.

WELCOME Mamata Sivagnanam, M.D., Gastroenterology

Setting Sail for Adventure Every August for the past 17 years, the Little Race for Little People has made quite a splash to help Rady Children’s Neonatal Intensive Care Unit. The Little Race, San Diego’s wackiest inflatable boat race, is hosted by the Chula Vista Yacht Club at the California Yacht Marina in Chula Vista. Armed with only inflatable dinghies and sheets as sails, the teams race (read: get drenched) to help Rady Children’s tiniest and most fragile patients. Over the years, the Little Race has made a big impact, raising more than $500,000. Recruiting the finest physicians from across the country is a priority for Rady Children’s. Bringing the best here means offering the best to our patients.

Rady Children’s Magazine 9

WELCOME Kirtida Mistry, M.D., Nephrology

Happy Birthday, Mr. Rady A celebration for Ernest Rady’s 70th birthday raised more than $860,000 for our new Patient Care Pavilion (see page 36-37).

Burt Yaszay, M.D., Orthopedics For more information on the Orthopedics Division, please see pages 29-31.

Miracle Makers Celebration Every September, Rady Children’s honors those corporations and community groups who raise more than $5,000 annually for the Hospital. Last year’s celebration featured Frankie Valli; this September, Kenny G performed, including an inspirational duet with patient Austin Gatus (see page 2). For more information on the Miracle Makers program, please see pages 46-49.

Special Gifts:

$150,000 from Aflac to benefit Rady Children’s Hematology/Oncology Fund. In April, Aflac contributed an additional $3,850 from the sale of Aflac Holiday Ducks!

Congratulations to George Kaplan, M.D. for receiving the prestigious 2007 Pediatric Urology Medal from the Section on Urology. In January 2008, Dr. Kaplan was also given the Lifetime Achievement Award from the Society of Government Service Urologists. Congratulations to Martin Stein, M.D. for receiving the C. Anderson Aldrich Award for life-long contributions in child development from the American Academy of Pediatrics.

Walking the Walk October means a whale of a good time for those who want to take extra steps to help kids.The firstever Shamu and You Family Walk was held in fiscal year 2008, raising more than $92,000. For more information on this year’s event, please see page 45. Through a joint application with the UCSD adult Blood and Marrow Transplant Program, Rady Children’s pediatric Blood and Marrow Transplant Program was successfully accredited by the Foundation for the Accreditation of Cellular Therapy (FACT). FACT establishes standards for high quality medical and laboratory practice in cellular therapies. Accredited facilities have met rigorous standards, as defined by the leading experts in the field, and based on the latest knowledge of the field of cellular therapy product transplantation and in compliance with governmental regulations. For more information about FACT and our Hematology/Oncology programs, please see page 27.

10 Rady Children’s Magazine

Rady Children’s Hospital Auxiliary Falls into Action November is a busy month for Rady Children’s Hospital Auxiliary with its Holiday Gala. Last year, the theme was “Holiday on Broadway,” and the results were a real show stopper: More than $50,000 was raised for Pediatric Cancer Research at Rady Children’s. From Gala to Ice Rink, the 11th Annual Fantasy on Ice event at Horton Square raised $162,645 for the Cancer Center. To learn about how you can get involved with this enthusiastic and creative group of volunteers, please see page 51.

Special Gifts:

$100,000 from the Epstein Family Foundation to benefit the new Patient Care Pavilion.

Special Gifts:

$500,000 from Jim Greenbaum to benefit the new Patient Care Pavilion.

Union-Tribune Kids’ NewsDay Originally scheduled for October 23, 2007, the 18th Annual Union-Tribune Kids’ NewsDay was rescheduled to December 4 due to the San Diego wildfires. A city still reeling from the tragedies caused by the fires rallied to give Rady Children’s more than $125,000. More than 170 schools participated; major sponsors included: The San Diego Union-Tribune, NBC 7/39, RCP Block and Brick, WaMu, Oliver McMillan, Sunbow, Wal*Mart and Charlotte Russe.

Breaking New Ground. Reaching New Heights. December 5, 2007 was an historic day at Rady Children’s as we broke ground on our new 279,000-square-foot Patient Care Pavilion. Due to be completed in 2010, this incredible building will allow Rady Children’s to offer the latest advances in medical care in a warm and inviting family-centered facility. Today, the Pavilion is progressing on time and on budget. For more information, please see page 36-37.

Rady Children’s Magazine 11

Ricardo (Ricky) Calderon-Rivera, shown here with his mother, Ivette, was admitted to Rady Children’s Ernest Hahn Critical Care Center after a seizure last April. He was so sick that a priest baptized him at Scripps Hospital before he was transferred to Rady Children’s. Ricky is now back at home and doing well.

12 Rady Children’s Magazine

Rady Children’s Annual Meeting Each January, senior staff gathers with volunteer leaders and community members to celebrate Rady Children’s accomplishments and look, together, toward the future. The 2008 Annual Meeting honored excellence in teaching, clinical care, quality and research, as well as the importance of volunteerism and philanthropy.

Special Gifts: $26,000 from Las Patronas to purchase a state-of-the-art ventilator for the Ernest Hahn Critical Care Center.

Special Gifts: $111,060 from The California Endowment to support the Chadwick Center for Children and Families. For more information about this gift, please see page 64.

Special Gifts: More than $400,000 from the 99th

WELCOME Kimberly Newton, M.D., Advanced Hepatology, Gastroenterology

Anniversary Charity Ball, benefiting Rady Children’s Surgical Services.

Special Gifts: $150,000 from Karla J. Hertzog to benefit the new Patient Care Pavilion.

The Ernest Hahn Critical Care Center (Pediatric Intensive Care Unit) at Rady Children’s has consistently been ranked #1 in the nation for pediatric survival rates, based on the Pediatric Risk Mortality Program (PRISM). The Pediatric Intensive Care Unit Evaluations (PICUEs) project software enables the Center to enter descriptive, physiologic, therapeutic, and outcome data for all patients admitted to our PICU, then use PRISM algorithms to display and print severity-adjusted probabilities of death and lengths of stay for each patient. Using PRISM analysis for the years 2005-2007, we were predicted to have 220 deaths; however, only 121 deaths occurred (an 8.4 standard deviation to the good side). This data drives the Center to even higher levels of excellence. And that means saving more lives.

Rady Children’s Magazine 13

Eleven-year-old Jesus was a snorer. For several years, he was robbed of a good night’s sleep. He was recently diagnosed with obstructive sleep apnea, causing blockage of the upper airway and cessation of breathing for several seconds. When left untreated, it can lead to heart problems, high blood pressure, behavioral problems and poor performance in school. Jesus’ adenoids were surgically removed, with life-changing results. His parents are hopeful that his grades will improve now that he is sleeping better.

14 Rady Children’s Magazine

WELCOME Kerri Boutelle, Ph.D., Clinical Psychologist in Behavioral Weight Intervention, Gastroenterology Bonny J. Forrest, J.D., Ph.D., Director, Clinical Programs, Developmental Services For more information on Dr. Forrest and her work here in Autism treatment and research, please see pages 18-21

Congratulations to Kenneth Lyons Jones, M.D. for receiving the March of Dimes Colonel Harland Sanders Lifetime Achievement Award in Genetics.

Congratulations to Seth Pransky, M.D. for receiving the Gabriel F. Tucker Award for contributions in Pediatric Laryngology from the American Laryngological Association.

Seventh Annual Radiothon: Tuning into Community Awareness Each spring, Rady Children’s teams with Clear Channel radio stations, Kiwanis of San Diego and Imperial Counties and the Foresters to bring our patient stories to the San Diego airwaves. The March 2008 event raised awareness throughout the community – and more than $418,000 for the Hospital.

East County Urgent Care Reopens In March, a new Urgent Care Center reopened in East County, adjacent to Sharp Grossmont Hospital. This was an important step in providing easier access to families in the East County and helping to reduce the volume of patients coming to the Sam S. and Rose Stein Emergency Care Center at Rady Children’s main campus. For more information on all our Urgent Care Centers, including phone numbers, hours and information on when to go to an Urgent Care Center, please see the center insert of this report.

Special Gifts:

$200,000 from Rest Haven Children’s Health Fund to name the waiting and play area in the new Patient Care Pavilion’s Neonatal Intensive Care Unit.

Special Gifts:

$200,000 from the Emilio Nares Foundation to name four living spaces in the Hematology/Oncology Unit in the new Patient Care Pavilion.

New Eczema Center: Care That’s More Than Skin Deep The first of its kind in the country, the Eczema Center practices comprehensive patient care and is committed to integrating basic and clinical research for prevention and improved treatment of atopic dermatitis. Education of patients and families is a central part of the Eczema Center's mission. For more information on the Eczema Center and Rady Children’s groundbreaking work in Dermatology, please see pages 23- 24.

Rady Children’s Magazine 15

Congratulations to Gabriel G. Haddad, M.D. on being elected to the American Association of Physicians.

Congratulations to Victor Nizet, M.D. for receiving the E. Mead Johnson Award for Research in Pediatrics at the 2008 Annual Meeting of Pediatric Academic Societies.

New Pediatric Unit at Sharp Grossmont Above and beyond the new East County Urgent Care Center (see page 15 and center insert), expanded pediatric medical services are now available in East County through a partnership between Rady Children’s and Sharp Grossmont Hospital to operate an 11-bed pediatric unit at the East County hospital. The new unit, known as Rady Children’s at Sharp Grossmont Hospital, opened its doors on May 12.

Epic Changes: New Electronic Medical Records System In changes that will ultimately affect the entire Children’s Health Network and the way we deliver healthcare, Rady Children’s officially launched a new multi-year computer system implementation with Epic Systems, introducing a full-blown Electronic Medical Record and new tools to support our Clinical Care Providers, Revenue Cycle and Health Information Management teams. Why the change? Epic allows Rady Children’s to offer a more efficient, effective health records system. It safely shares patient data across all entities – from the primary physician to the emergency room to the operating room. With no redundancy, patient care is easier for the families and gives doctors all the information they need to develop the best treatments. There’s less paper, too, and, from a business perspective, provides a healthier revenue recovery cycle. The end result? Higher-quality patient care. And that’s an Epic reward!

Miracle Makers Gala: Miracolo Carnivale! Each year, the Miracle Makers Gala honors corporations and organizations that have each raised $15,000 or more annually. This year’s Gala transported guests to a Venetian-style celebration – all in honor of the miracles in healthcare made possible each year by those who make it part of their business to help kids. We recognized $9.3 million in gifts and raised an additional $103,000 that night through table sales and outright gifts.

Special Gifts:

$1.1 million from COSTCO Wholesale to support Rady Children’s highest and most urgent needs. For more information about COSTCO, please see page 45.

Special Gifts:

More than $300,000 from Rite Aid to support Rady Children’s highest and most urgent needs. In fiscal year 2008, Rite Aid became one of our special corporate donors who has reached the million-dollar milestone, raising more than $1.1 million since 1998.

16 Rady Children’s Magazine

Best-Ever Operating Results Certainly, one of the highlights of fiscal year 2008 was the financial success of the Hospital. For a complete financial overview, please see pages 6-7.

$8 Million to CASRC for Advanced Center In an impressive step to advance research at Rady Children’s, the Child and Adolescent Services Research Center (CASRC) received its largest grant ever. CASRC was awarded $8 million by the National Institute of Mental Health to support an Advanced Center to Improve Pediatric Mental Health Care. The Center, founded in 1989, is the only federally funded research center in the nation focusing on children’s mental health services research. The Advanced Center will focus on effectiveness and equity for mental health care delivered in the public mental health and child welfare sectors. The aim is to translate evidence-based treatments into real-world settings, and to develop interventions that fit better in community care.

Neonatal Care: Among the Best in the Country The June 9, 2008 issue of U.S. News & World Report ranked Rady Children’s neonatology program among the top neonatal care programs in the country for its excellent reputation and care provided. In its annual rankings of the best children’s hospitals and specialty programs in the country, our neonatal care program ranked 28th out of the 113 children’s hospitals included in the survey. This accomplishment places our NICU among the very best.

Special Gifts:

$1.2 million from Ledcor Construction, Inc. toward the purchase of a cardiac-capable MRI.

Special Gifts:

$25,000 from Cardinal Health to promote patient safety programs.

Special Gifts: $500,000 from Patti and Doug Holmes to name the Hematology/Oncology Playroom and Classroom in the new Patient Care Pavilion. For more information about this gift, please see page 62.

Special Gifts:

$100,000 from Dave Lede for lifesaving equipment for the Neonatal Intensive Care Unit.

Special Gifts: $1 million from the Hervey Family Fund to support the new Patient Care Pavilion.

For more

information on this gift, please see page 60.

Special Gifts:

$6.9 million from Rady Children’s Hospital Auxiliary. For more information on the Auxiliary and how its gift was used, please see page 51.

Rady Children’s Magazine 17

In the 2006 Fall Issue of Rady Children’s Magazine, we introduced you to 2-yearold Alexa Ortiz, diagnosed with autism at 14 months and attending Rady Children’s Toddler School. Her father, Dr. Ariel Ortiz, and mother, Cynthia (shown here with Alexa in October), tell of their family’s journey: “We were chosen to have a special child with special needs. How and where would we meet those needs? What would be the outcome? We asked these questions as we held hands and prayed. The response to our prayers was almost immediate, as we received a call from the Toddler School at Rady Children’s. The first few weeks were tough, but a couple of months passed, and we got to know the whole staff – warm and compassionate experts teaching our child to learn. “Rady Children’s has not only touched us; it has profoundly changed our lives forever. It has opened our minds to fulfill our duty to serve and our spiritual need to give, thereby fulfilling one of God’s most important rules: Love others as you love yourself. “For Alexa, we are proud to say that she has graduated Toddler School, acing every test and exceeding every expectation… even ours.” The Ortiz’s were so touched by their experience with Rady Children’s that they have become members of Children’s Circle of Care (see pages 38-41), ensuring that other children will always have access to the same level of care. 18 Rady Children’s Magazine

Medical Excellence and Research Our Five Programs of Distinction

E

very area of care offered at Rady Children’s – every specialty – is vitally important. The breadth of these programs is impressive, as you’ll see in our Directory of Care and Services (see center insert).

As we look to the future and enhancing our commitment to patient care, research and teaching, five programs have been selected for special focus. In the Spring 2008 issue of Rady Children’s Magazine, we introduced you to these areas: Autism, Dermatology, the Heart Institute (Cardiology and Cardiovascular Surgery), Hematology/Oncology and Orthopedics. For this Report, we are pleased to give you an overview of 2008 accomplishments for each of our Programs of Distinction.

Autism

A

utism spectrum disorders (ASD) are the fastest growing serious developmental disabilities in the United States. They are more prevalent than childhood cancers, juvenile diabetes and pediatric AIDS combined.

The incidence of autism is increasing dramatically. Across California, approximately 18,000 children have been diagnosed with ASD and nationally one in 150 children will be diagnosed. In San Diego, with current incidence rates, approximately 267 children will be born each year with ASD. “Think about the things that are the most precious in our lives – the smile of a loved one or the look of joy in a child’s face – those social connections that bind us together as humans,” says Bonny Forrest, J.D., Ph.D., director of Clinical Programs, Developmental Services. “Those moments of connection are most at risk in families of children with autism. It is very exciting to think that the Hospital is taking the initiative to meet a need that has reached epidemic proportions in this area and across the country.” Dr. Forrest says Rady Children’s is perfectly positioned to build a comprehensive, world-class program for families of children with autism spectrum disorder that uses the Hospital’s clinical expertise to investigate some of the most critical research questions of our time.

Autism Intervention Center An autistic spectrum disorder (ASD) is a developmental disorder that affects many aspects of a child’s functioning. The disorder is characterized by delays in communication skills, difficulty with social interaction and imaginative play and other behavioral symptoms that involve repetitive behaviors and a limited range of interests. To assist children with ASD and their families as well as other professionals working in this area, psychologists and developmental specialists at the Autism Intervention Center employ a variety of intervention strategies in both the clinic and natural settings (such as classrooms or homes). Because each child with ASD is different and each family will have different needs, the developmental specialists create individualized treatment plans for each child and their parents.

During the past year, the Autism Intervention Center provided more than 1,668 visits to children with autism and their families, working with 139 families.

(AUTISM continued on next page)

Rady Children’s Magazine 19

(continued from previous page)

Toddler School The Toddler School is an educational program for children 18 months to 3 years of age that is designed to integrate typically developing toddlers and toddlers at high risk for autism or related disorders. The Toddler School curriculum focuses on teaching communication and cognitive and social skills, while fostering independence in daily activities for all children involved. The Toddler School works in partnership with California Early Start, a component of San Diego Regional Center, which supports a portion of the costs for children at high risk for autism. Teachers are trained in a variety of methodologies currently used to facilitate the development of young children with autism. An incidental teaching approach supports children’s learning as they play naturally in a nurturing environment. “This year we are very proud of our Toddler School outcome data indicating that about 60 percent of children are mainstreamed into typical elementary school classrooms,” says Aubyn Stahmer, Ph.D. “We are also very excited about the expansion of our toddler and preschool inclusion programs through collaboration with the excellent team at the Child Care Center.”

Child Care Center and Inclusion Program In addition to providing an enriching childcare experience, the program is designed to provide inclusive learning opportunities for toddlers and preschoolers with special needs. The Inclusion Program has received support from a generous donor to employ a full-time inclusion teacher who supports children with special needs, provides guidance to classroom teachers and assists with curriculum development. The Center also collaborates with special education providers through the San Diego Unified School District by providing an inclusion environment for children with individualized education plans.

Developmental Evaluation Clinic Rady Children’s Developmental Evaluation Clinic offers developmental evaluation services for infants, preschoolers and school-age children. These services include: • Identifying developmental, learning and social delays. • Determining the significance of delays and behavior problems. • Determining the need for further assessment/intervention. • Recommending participation in educational or therapeutic programs. • Linking children and families to needed services. • Providing comprehensive reports to parents and providers. This clinic provides diagnostic assessments for children suspected of having an ASD and is the only provider south of Los Angeles to provide comprehensive evaluations of this nature for children under the age of 5 on Medi-Cal.

In the past year, 1,356 children were evaluated at the Development Evaluation Clinic. More than 90 percent were identified as having developmental or behavior needs and 20 percent were diagnosed with an autistic spectrum disorder.

20 Rady Children’s Magazine

Children’s Care Connection (C3) C3 is a free program offered by Rady Children’s to identify and treat developmental and behavioral concerns in children ages 0 months to five years (or kindergarten entry, whichever comes first). The C3 program, funded by the First 5 Commission of San Diego (Proposition 10 – the tobacco tax), is free to qualified families in San Diego County. Children receive a developmental and behavioral assessment at one of the C3 sites (located in Oceanside, San Diego and San Marcos).

Autism Research Toddler School A recent study examined predictors of long-term outcome and service utilization, stability of diagnosis and parental stress related to child characteristics of children with autism spectrum disorders who attended the Toddler School. Children were tested for cognitive and adaptive behavior skills at entry, exit and at a follow-up period of one to five years after exit from the Toddler School. The majority of children (60%) were in regular classroom placement at elementary school. Parent Intervention Training Rady Children’s has collaborated with Drs. Sally Rogers and Laurie Vismara at the MIND Institute on a project examining distance learning of the Early Start Denver Model for parents and therapists working with very young children with autism. Intervention Projects in Collaboration with UCSD Rady Children’s has conducted a variety of research examining different behavioral interventions for children with autism with researchers at UCSD. We are currently collaborating with Dr. Laura Schreibman to provide the intervention component of Dr. Eric Courchesne’s Autism Center for Excellence grant.

Welcome to Dr. Bonny Forrest Dr. Bonny J. Forrest, Director, Clinical Programs, Developmental Services joined Rady Children’s in March 2008 to oversee developmental, evaluation and treatment programs for children. “I was recruited specifically to help with the autism effort and joined Rady Children’s because I so believed in what the Hospital is doing – it is an exciting time here,” says Dr. Forrest. After practicing law for a decade, she received her Ph.D. in psychology from Columbia University with a specialization in pediatric neuropsychology. She completed her specialty internship at the Yale Child Study Center and Yale School of Medicine. Subsequently, she received a National Institute of Mental Health post-doctoral fellowship, gaining additional experiences in pediatric brain imaging, research and treatment of childhood disorders. Dr. Forrest teaches, consults, writes and lectures extensively on autism spectrum disorders and other neurological issues of childhood.

Rady Children’s Magazine 21

Cazz Trisby has suffered since he was born with a severe form of atopic dermatitis, more commonly known as eczema. Eczema affects about 15 percent of all children under the age 9, with symptoms such as chronic itching, rashes, weeping lesions and dry skin. The causes are both genetic and environmental. Cazz’s condition is further complicated by multiple allergies. He frequently had to wear thick mittens taped on his hands and feet to discourage him from scratching and hurting himself. The mittens allow special ointments to do their work uninterrupted, moisturizing his skin and helping to suppress the itching.

22 Rady Children’s Magazine

Dermatology

T

he Dermatology Division at Rady Children’s is growing in every way possible. Throughout the last year, it has experienced active growth physically, with new and expanded services at satellite locations in the community and on the main hospital campus. The Division has also seen an increase in the number of patients seen in the clinics and the number of surgeries and other procedures performed. In addition to growth in the number of patients treated and physical space, the Division’s reputation continues to grow on local, national and international levels. Physicians from the division have been responsible for multiple presentations, as well as published articles and studies which have been featured in national news publications and medical journals, including the New England Journal of Medicine and XM Satellite Radio.

Eczema Center Celebrates Year of Successes As the only center of its kind in the United States, the Eczema Center at Rady Children’s is dedicated to clinical care, family education, and research on atopic dermatitis and other inflammatory skin diseases. Atopic dermatitis or eczema affects up to 20 percent of all children. That’s about 300 times the number of children affected a few decades ago. “Eczema is a complex disease with significant impact on children and their families,” says Dr. Lawrence F. Eichenfield, who directs the Eczema Center along with Dr. Magdalene Dohil. “We believe that innovative education plays a crucial role in its treatment.” The Eczema Center provides comprehensive patient care, with access to the Dermatology Division’s active research program, including clinical trials for new treatment modalities for atopic dermatitis and other skin conditions. Patient and family education are central to the Eczema Center’s concept of treating the “whole child.” The center offers Eczema School on weekends and evenings to help families learn more about eczema, treatment options, triggers and hands-on demonstrations for different therapies. The Eczema Center also recently launched a website for eczema patients, and caregivers – www.eczemacenter.org. The web site provides extensive information on etiology, treatment, research, available resources and upcoming Center events.

In the last year alone, the Dermatology Division’s work has led to approval of three new topical corticosteroids for eczema designed to treat children 3 months and older. The Division is also looking at Vitamin D and how it may help boost the skin’s immune system.

(DERMATOLOGY continued on next page)

Rady Children’s Magazine 23

(continued from previous page)

Focus on Research Yields New Treatment Options The Division also actively pursues new therapies for atopic dermatitis and other skin disorders. Evaluating the safety and efficacy of new products for treating young children is the focus of much of the division’s research. “The body is protected by the skin, which is both a physical barrier and a place where the immune system does battle,” said Dr. Eichenfield. “Part of the ‘innate immune system’ is present in the skin and helps to protect the body from bacteria and other microbes. Current research has shown that, in eczema patients, certain parts of this innate immune system are deficient. We are trying to determine if Vitamin D can help boost the skin’s immune system, especially for patients with atopic dermatitis.” Other research being conducted by the division includes a study on a common birthmark known as a hemangioma. Seen in approximately 10 percent of children, these growths of blood vessels can be associated with significant deformity and organ damage. Dr. Sheila Fallon Friedlander, a Rady Children’s Dermatologist, is conducting research in conjunction with The Scripps Research Institute and Sharp Mary Birch Hospital for Women, looking at the etiology of these birthmarks and how they may relate to placental abnormalities. The division is also conducting clinical trials for treatment of acne, diaper rash, eczema/atopic dermatitis, psoriasis, epidermolysis bullosa, and new formulations of sunscreens.

Welcome to Dr. Wynnis Tom The Dermatology Division also welcomed a new physician to the group. Dr. Wynnis Tom completed her residency at Saint Louis University in 2007 and her fellowship at Rady Children's/UCSD. She was recently awarded the Society for Pediatric Dermatology’s Pilot Program Award for a research project on systemic therapies for atopic dermatitis.

24 Rady Children’s Magazine

Heart Institute

O

ver the last fiscal year, Rady Children’s Heart Institute has treated a record number of children. As highlighted in the Summer Issue of Rady Children’s Magazine (available online at www.rchsd.org), the Institute, operated in partnership with UCSD, is the second busiest cardiology department in California – and more growth is on the way. And it’s growth that is vitally needed. Despite dramatic advances made in medical science over the last half-century, nearly 1 child in 100 is born with a heart defect. Rady Children’s Heart Institute not only serves San Diego and Imperial Counties, but also treats referral patients from Arizona, New Mexico, Hawaii and the Pacific Rim.

Life-Saving Research The research portfolio is also growing, with 22 approved clinical research studies in progress. Among the newest studies is COAST, the Coarctation of the Aorta Stent Trial. Rady Children’s is one of only 15 medical centers nationwide selected to be part of this study, which uses the CheathamPlatinum stent in youths with chronic coarctation of the aorta. Why platinum? It is the latest wave of interventional devices: light and durable – and the patients can still have MRIs, an important diagnostic tool that can’t be used as easily on patients with stents of other metals. And in a move destined to aid our community far into the future, we began the multi-year process to become a pediatric heart transplant center – to become one of only five in California.

New Technology Staying on the front lines of medicine, the Institute has added impressive new technology – tools as small as the newest platinum catheterization stents and as massive as a new cardiology MRI. Among the newest technologies are 20 new digital Holter Monitors. These portable EKGs are worn on the bodies of kids during normal activity, generally over a 24-hour period, to measure for abnormal heart rhythm and other danger signs. When you’re small, a monitor the size of a paperback novel, as the old models were, can be uncomfortable. The new digital devices aren’t much bigger than iPod media players.

The Cath Lab in the International Spotlight Rady Children’s was in the spotlight this summer when John Moore, M.D., Director, Division of Cardiology, performed three procedures in our cardiac catheterization lab that were broadcast live to cardiologists gathered in Las Vegas for the Pediatric and Adult Interventional Cardiology Symposium (PICS). One of the procedures was performed on Angela Zules, a 17-year-old from Ecuador, providing a tremendous learning opportunity for PICS attendees. Angela told the media covering the live procedure that, once she gets past the medical challenges caused by her congenital heart defect, she has her now-repaired heart set on becoming a doctor herself.

By the Numbers: Heart Institute in 2008 8,919 cardiology outpatient clinic visits • 38,287 cardiac diagnostic tests and scans 675 cardiac catheterizations • 317 closed and open-heart surgeries

The Hybrid Procedure: A Better Way to Help Kids The “Hybrid Procedure” combines a relatively minor surgical procedure with an interventional catheterization procedure for high-risk infants with Hypoplastic Left Heart Syndrome. The Hybrid is an alternative to the standard surgery (Norwood-Sano Procedure), which requires use of the heart-lung machine and often circulatory arrest. The Hybrid Procedure is much less invasive, has lower risk and improved outcomes. Rady Children’s is one among only a small number of centers performing Hybrids in the United States.

Rady Children’s Magazine 25

When Carson Cloyd was 6, he had to battle two life-threatening conditions simultaneously. Four months after his 6th birthday, he was diagnosed with Acute Lymphatic Leukemia (ALL). While undergoing chemotherapy, Carson ’s weakened body was attacked by a virulent fungal infection known as Mucor. He underwent five surgeries and ended up losing his spleen, one kidney and parts of his bowel and pancreas. He was hospitalized at Rady Children’s for 98 days, including more than a third of that in the intensive care unit. Carson is now 7. His cancer is in remission and he is scheduled to have his last maintenance cancer treatment on July 1, 2009.

26 Rady Children’s Magazine

Hematology/Oncology

P

artnerships and support have been central themes around Hematology/Oncology at Rady Children’s this year, such as the collaborative alliances between Rady Children’s, UCSD and St. Jude Children’s Research Hospital (see page 9).

New Accreditations Solidify Hem/Onc’s Reputation The Hematology/Oncology Division, in conjunction with the University of California, San Diego received accreditation from the Foundation for the Accreditation of Cellular Therapy (FACT) for the Bone Marrow Transplant Program. The Division was also recently accredited by the Accreditation Council for Graduate Medical Education (ACGME ) for a hematology/oncology fellowship program. By training the next generation of physicians, the Hematology/Oncology division will be able to continue its work on behalf of San Diego’s children. “In everything we do, our intentions are to gain a better understanding of the disease processes, which helps us to design better treatment plans and results in increased survival rates and more positive outcomes for patients and their families,” says Dr. William Roberts, Director of Hematology/Oncology at Rady Children’s.

Oncology Unit In Tijuana Helps Kids with Cancer The recent opening of the Pediatric Oncology Unit at the Hospital General de Tijuana is a perfect example of Rady Children’s reaching out to the community as a whole to assure that children with cancer receive the best possible opportunity for healthy lives. Dr. Roberts was instrumental in providing advice and expertise to the staff at General Hospital in getting the unit up and running. While Rady Children’s has no role in operating the program, nor are any Rady Children’s physicians seeing patients at the hospital, the alliance between Rady Children’s and St. Jude

Children’s Research Hospital made the Oncology Unit in Tijuana possible. “With support and resources from St. Jude, we were able to assist in providing a good infrastructure at the Hospital General de Tijuana to help improve outcomes for pediatric cancer patients living in Mexico,” says Roberts. Many children with cancer who live in Baja California didn’t have access to the specialized care they need to improve their health outcomes. With this new oncology unit open the children have access to quality care in a clean and safe environment close to home. Additionally, the General Hospital has met the necessary standards to offer “Seguro Popular,” Mexico’s health insurance program.

Impact of Research Projects on Future Treatments The staff of the Hematology/Oncology Division is participating in several research projects that will provide better understanding and better treatment options for pediatric cancer patients. Dr. Jennifer Willert is working on a project to study the role of integrins and caspase 8 in progression of neuroblastoma in patients in collaboration with Dr. Dwayne Stupak of the UCSD Moores Cancer Center. Dr. Eric Anderson is working on a project regarding the molecular basis of metastasis in the Ewing’s Sarcoma Family of Tumors with Dr. Roberts and Dr. Jing Yang, from UCSD. This project is supported by a $30,000 donation from the Hyundai Hope on Wheels Tour. Dr. Deborah Schiff is the Physician Coordinator of the St. Jude Children’s Research Hospital/Rady Children’s Alliance. In conjunction with the St. Jude Children’s Research Hospital, she is the principal investigator at Rady Children’s for two studies of therapy for relapsed or refractory acute lymphoblastic leukemia.

Thanks to an extraordinary gift from the Peckham Family, the Hematology/Oncology program at Rady Children’s is now known as the Peckham Center for Cancer and Blood Disorders. For more information about the Peckhams, please see page 54.

Rady Children’s Magazine 27

In December 2007, Victoria Huerta, now 7, was sidelined by the diagnosis of congenital scoliosis. This condition, which is an abnormal curvature of the spine, would ultimately require three surgeries performed by Dr. Peter Newton of the Pediatric Orthopedic and Scoliosis Center at Rady Children’s. In the future, Victoria may have limited trunk motion (flexibility) when it comes to certain types of sporting activities, but otherwise should have no limitations. So, despite her recent surgeries, Victoria ’s forecast for fun looks bright.

28 Rady Children’s Magazine

Orthopedics ady Children’s Orthopedic Division was recognized by Child Magazine as among the top five pediatric orthopedic departments in the United States. The department is also the largest pediatric orthopedic department with the highest number of pediatric orthopedic physicians in the state of California.

R

“Recent studies demonstrated that one out of 278 people in the United States has cerebral palsy,” says Dr. Henry Chambers, director of the Center. “The partnership between Rady Children’s and Children’s Specialists has made a national and international impact for the families who are challenged with this disorder.”

“We’re honored to be recognized nationally for the top care we provide patients who often travel here from across the nation and around the world,” says Scott Mubarak, M.D., Director of Orthopedics at Rady Children’s. “The top ranking reflects the clinical expertise, top notch research and surgical innovations that have been developed by our orthopedic team.”

The Center also received a $1 million grant from the National Institutes of Health to study the effects of medication on spasticity in children.

New Growth for 2008 The Division opened a 2,600-square-foot pediatric orthopedic office in Escondido in May 2007 to accommodate North County patients and their families. The Escondido office is growing, and all members of the Rady Children’s orthopedic staff provide patient care there, including physicians, nurse practitioners and physician assistants. In addition to Escondido, patients are seen at the orthopedic office at 3030 Children’s Way and at the Care Team 4 Clinic inside the main Hospital. A multi-disciplinary team of orthopedic specialists provide individualized assessment, early diagnosis, appropriate treatment and follow-up care. According to Dr. Mubarak, outpatient volume increased by 8 percent at all three orthopedic treatment centers. The total number of visits logged in 2008 for all Rady Children’s orthopedic offices was 49,462. “We serve 3 million people in San Diego County as well as thousands more from Riverside, Orange and Imperial Counties who regularly use Rady Children’s Orthopedics as their base for orthopedic care,” says Dennis Wenger, M.D., Director of the Pediatric Orthopedic Training Program at Rady Children’s.

Due to increasing patient care, two new staff physicians have been hired and the nurse practitioner/physician assistant group continues to grow, allowing us to meet significant patient care demand (see page 31). The Spine Program is part of Rady Children’s Scoliosis Center, nationally recognized for its patient care, education and research in the field of scoliosis, kyphosis, spondylolisthesis and other spine conditions. The Sports Medicine Program (CHAMPS): Children’s Health, Athletic Medicine and Performance. It covers all aspects of health practices as well as treatment and prevention of sports injuries. “The CHAMPS program continues to grow as we added a new sports physician, Dr. Eric Edmonds,” says Dr. Chambers, director of CHAMPS. “Innovative procedures, national educational events and new research in the field of sports medicine have marked a very successful year in the management of sports injuries in children and adolescents.” The Center for Human Performance, under the leadership of Arnel Aguinaldo, has been very active in the Motion Analysis Laboratory to improve athletic performance in amateur and professional athletes as well as to prevent injuries. Several research grants from Major League Baseball were awarded to the Orthopedics Division in the past few years to study the effect of pitching on young athletes.

The Southern California Cerebral Palsy Center was established last year to serve children and young adults with cerebral palsy through improved clinical, education and research studies.

(ORTHOPEDICS continued on next page)

Rady Children’s Magazine 29

(continued from previous page)

Training Programs Four new orthopedic fellows were added to the orthopedic training program on August 1, 2008, as well as two international fellows who study at Rady Children’s. The residency program includes residents from the University of California, San Diego; the San Diego Naval Training Center; and the Wilford Hall Air Force orthopedic program in San Antonio, Texas.

Endowed Fellowship in Pediatric Orthopedics Lena Sefton Clark, one of the earliest supporters of Rady Children’s through the Charity Ball, passed away in 1964. In her honor, her family established the Lena Sefton Clark Endowed Fellowship in Pediatric Orthopedics in 2007, which provides a perpetual source of funding to support education, training and research in Orthopedics at Rady Children’s. Vineeta T. Swaroop, M.D., is the first Lena Sefton Clark Fellow. Dr. Swaroop graduated from Duke and Georgetown University School of Medicine. Before coming to Rady Children’s as a fellow, she completed her residency at Northwestern University Feinberg School of Medicine. Reflecting on her fellowship, Dr. Swaroop commented, “What I liked most about my fellowship was the opportunity to be involved in many different aspects of patient care, education and research.”

The result is increased research interest and productivity. Of the 90 podium presentations at the recent Pediatric Orthopaedic Society of North America (POSNA) meeting in Albuquerque, six were from Rady Children’s Orthopedic Research Program. Tracy Bastrom, Orthopedic Research Program manager, said the past year in research has been a great success. “We managed to surpass our 2006 publication rate with 30 manuscripts printed in peer-reviewed journals,” says Bastrom. “Our 2006-2007 fellows were extremely active and many of their studies were featured at this year’s Pediatric Orthopaedic Society of North America meeting in Albuquerque.” The Orthopedic Biomechanics Research Center (OBRC) at Rady Children’s was founded in November 1998 with an initial research focus towards adolescent idiopathic scoliosis. Tucker Tomlinson, director of OBRC, is a UCSD orthopedic resident on a two-year research rotation in Rady Children’s research laboratories. Other orthopedic research efforts include:

• Center for Spinal Deformities Rady Children’s is the primary site for a multicenter, international study on the outcome of thoracoscopic scoliosis surgery. This study contains one of the most advanced databases on scoliosis in the world.

• Motion Analysis Laboratory

Orthopedic Division Research Dr. Peter Newton continues the direction of orthopedics comprehensive research program. All eight orthopedists in the Orthopedics Division participate in clinical trials and research activities. According to Dr. Wenger, Rady Children’s research program benefits from the legacy of University of California, San Diego’s research philosophy, whose orthopedic efforts, initiated by Dr. Wayne Akeson, continue to guide the research program’s intellectual inquiry. Dr. Steve Garfin, current Chair of Orthopedics at UCSD, continues a team approach to pediatric orthopedic research.

30 Rady Children’s Magazine

Analysis of pitching motion to understand causes of injuries and to train young pitchers in proper body mechanics to avoid injury. Analysis of the effects of trunk motion before and after spinal fusion operations. Evaluation of gait in patients with cerebral palsy to make surgical analysis based on the findings.

• Center for Orthopedic Outcomes Studies on outcomes of surgical correction of residual hip dysplasia. Analysis of the epidemiology of a variety of fracture patterns. Study of surgical treatment of foot and spinal deformity in Duchenne muscular dystrophy patients.

Research Leads to Development of New Surgical Methods for Complex Cases One study in the Biomechanics Lab Research Center was the development of a surgical procedure to maintain an important ligament within the hip joint to assure successful reduction in children with complex developmental dislocation of the hip. This procedure has been applied in more than 30 hips at Rady Children’s and was presented as the lead-off scientific paper at the Pediatric Orthopedic Society of North America’s meeting. “The academic achievements of Rady Children’s Orthopedic Department have reached new heights in 2007,” says Dr. Newton. “Our orthopedic surgeons made over 55 scientific research presentations at national and international meetings, while publishing 30 manuscripts in leading orthopedic journals covering a variety of hip, knee, foot, spine and traumatic conditions.” He explains that two papers led off the national pediatric orthopedic meeting this year with our results of ultrasound aided treatment of dislocated hips the best ever reported. A study investigating the use of novel coatings on spinal screws to improve their holding power was awarded the best presentation at a Hong Kong meeting, while a long-term project to develop a growth modifying method to correct scoliosis without fusing the spine with rods has been presented to the FDA to begin clinical trials. “We remain committed to making discoveries that will advance orthopedic care for the children and adolescents of San Diego, but we also realize we have the expertise and responsibility to share that knowledge with our colleagues around the world,” says Dr. Newton.

Welcome Dr. Burt Yaszay Dr. Yaszay earned his undergraduate degree from UCSD and his medical degree from Stanford University. He completed orthopedic residency training at the University of Washington and Children’s Hospital of Seattle. In addition, he completed a pediatric and adult spine fellowship at New York University/Hospital for Joint Diseases. He joined Rady Children’s Orthopedic Department in September 2007. He plans to build a practice that will manage all pathologies of the pediatric spine: cervical instability, trauma, tumor and infection. He is devoted to better understanding of the treatment of scoliosis and has already received a grant to build a database at Rady Children’s that will produce an outcome tool for scoliosis secondary to cerebral palsy.

Welcome Dr. Eric W. Edmonds A native of Fresno, California, Dr. Edmonds attended Johns Hopkins University for his undergraduate education. He returned to California to earn his medical degree from the University of California, Davis. He completed an orthopedic residency at the Carolinas Medical Center in Charlotte, North Carolina and recently finished a pediatric orthopedic fellowship here at Rady Children’s. He joined the orthopedic staff on August 1, 2008. He has a broad interest in all of pediatric orthopedics, but also has a special interest in sports medicine.

Rady Children’s Magazine 31

Better Care Through Research You may not think research matters – until a child you love needs a lifesaving new therapy. Rady Children’s partnership with the University of California, San Diego (UCSD) is vitally important to the children in our community – and to others across the country and around the world. Because we’re partners – not competitors – children here benefit from access to a comprehensive team of physicians, all working together to investigate new treatments and protocols. Shared information from the lab and the bedside create a powerful dynamic. Through laboratory studies, we look far into the future to create new advances. Through clinical trials, we help children today. Sharing our work nationally and internationally is an important part of Rady Children’s Vision (see page 1). Through publications and presentations, our physicians are making an impact on pediatric healthcare on a national level (see full publication information, below and right). You’ll find more about important research with Rady Children’s and UCSD on Autism (pages 19-21), Dermatology (pages 23-24), the Heart Institute (page 25), Hematology/Oncology (page 27) and Orthopedics (pages 29-31). And there’s so much more, including: Dr. John Bradley authored three important publications on pediatric infectious diseases and Dr. Anthony Horner and

coauthors published two articles in the Division of Allergy and Immunology on allergenic response to house dust – both topics important to families everywhere. Drs. Jane Burns, John Bastian, John Kanegaye and Audrey Tremoulet have worked together to publish five articles on Kawasaki Disease. Rady Children’s/UCSD is a national leader in this field. Dr. Gabriel Haddad and coworkers have published four important articles on hypoxia and ischemic injury and survival in low oxygen, while Dr. Henry Krous and coworkers made a presentation at the SIDS 10th International Conference in Portsmouth, UK. Dr. Michael Levy published two significant articles on Pediatric Neurosurgery, helping children here (see page 4) and across the country. In a topic that’s extremely important to American families every day, Drs. Robb Newfield and Ken Jones have published articles on obesity and diabetes. Dr. Victor Nizet and coauthors have published four articles in the area of infectious diseases in the prestigious journals Science, Nature and Nature Medicine, reaching both physicians and parents.

Research really means more effective treatments, less pain and better outcomes. Each study is meticulously reviewed and monitored to help researchers understand pediatric conditions and develop safe and successful treatments.

It is with pride that we share just few highlights from the many respected publications and presentations that have showcased Rady Children’s and UCSD physicians. American Academy of Pediatrics, Committee on Infectious Diseases. Antiviral Therapy and Prophylaxis for Influenza in Children. Pediatrics 2007;119;852-860. Bradley JS, Arguedas A, Blumer JL, Saez-Llorens X, Melkote R, Noel GJ. Comparative study of levofloxacin in the treatment of children with community-acquired pneumonia. Pediatr Infect Dis J. 2007 Oct;26(10):868-78. Bradley JS, Sauberan JB, Ambrose PG, Bhavnani SM, Rasmussen MR, Capparelli EV. Meropenem Pharmacokinetics, Pharmacodynamics, and Monte Carlo Simulation in the Neonate. Pediatr Infect Dis J. 2008 Jul 21.epub.

32 Rady Children’s Magazine

Batzer G, Lam DP, Paulus P, Boasen J, Ng N, Horner AA. Using house dust extracts to understand the immunostimulatory activities of living environments. Immunobiology, 212:491-498, 2007 (PMCID: PMC1950943) Lam D, Ng N, Lee S, Batzer G, Horner AA. Airway house dust extract exposures modify allergen induced airway hypersensitivity responses by TLR4 dependent and independent pathways, J. Immunol, 181:2925-2932, 2008.

Wilder MS, Palinkas LA, Kao AS, Bastian JF, Burns JC. Delayed diagnosis by physicians contributes to the development of coronary artery aneurysms in patients with Kawasaki syndrome. Ped Inf Dis J. 2007;26: 256-260. Popper SJ, Shimizu C, Shike H, Kanegaye JT, Newburger JW, Sundel RS, Brown PO, Burns JC, Relman DA. Gene-expression patterns reveal underlying biological processes in Kawasaki disease. Genome Biology 2007;8:R261 [Epub ahead of print]. Kurio G, Zhiroff K, Jih L, Fronek A, Burns JC. Non-invasive determination of endothelial cell function in the microvasculature in Kawasaki syndrome. Pediatric Cardiology. 2008;29:121-125. Tremoulet AH, Best BM, Song S, Wang S, Corinaldesi E, Eichenfield J, Burns JC. Resistance to intravenous immunoglobulin in children with Kawasaki Disease. J Pediatr. 2008;153:117-121. Onouchi Y, Gunji T, Burns JC, Shimizu C, Newburger JW, Yashiro M, Nakamura Y, Yanagawa H, Wakui K, Fukushima Y, Kishi F, Hamamoto K, Terai M, Sato Y, Ouchi K, Saji T, Narai A, Kaburagi Y, Yoshikawa T, Suzuki K, Tanaka T, Nagai T, Cho H, Fujino A, Sekine A, Nakmuchi R, Tatsuhiko T, Kawasaki T, Nakamura Y, Hata A. IPTKC functional polymorphism associated with Kawasaki disease susceptibility and formation of coronary artery aneurysms. Nature Genetics 2008 Jan;40(1):35-42. Zhou D, Wang J, Zapala MA, Xue J, Schork NJ, Haddad GG. Gene expression in mouse brain following chronic hypoxia: role of sarcospan in glial cell death. Physiol Genomics. 2008 Feb 19;32(3):370-379. Yao H, Sun X, Gu X, Wang J, Haddad GG. Cell death in an ischemic infarct rim model. J Neurochem. 2007 Nov;103(4):16441653. Zhou D, Xue J, Chen J, Morcillo P, Lambert JD, White KP, Haddad GG. Experimental selection for Drosophila survival in extremely low O2 environment. PLoS ONE. 2007 May 30;2(5):e490.

Jandial R, Singec I, Duenas VJ, Ho AL, Levy ML, Snyder EY: Central nervous system repair and stem cells, Int. Congr. Ser. 2007 Park MS, Nguyen AD, Aryan HE, U HS, Levy ML, Semendeferi K: Evolution of the human brain: changing brain size and the fossil record. Neurosurgery. 60(3):555-562, March 2007. Newfield RS, Dewan AK , Jain S. Dyslipidemia in children with type 2 diabetes vs. obesity. Pediatr Diabetes. 2008 Apr;9(2):115-21. Epub 2008 Jan 19. PMID: 18221437 [PubMed - indexed for MEDLINE] Jones KL. Role of obesity in complicating and confusing the diagnosis and treatment of diabetes in children. Pediatrics. 2008 Feb;121(2):361-8. Review. PMID: 18245428 [PubMed - indexed for MEDLINE] Walker MJ, Hollands A, Sanderson-Smith M, Cole JN, Kirk JK, Henningham A, McArthur JD, Dinkla K, Aziz RK, Kansal RG, Simpson AJ, Buchanan JT, Chhatwal GS, Kotb M, Nizet V. DNase Sda1 provides selection pressure for a switch to invasive group A streptococcal infection. Nature Medicine 2007 13:981-985. http://www.sciencedaily.com/releases/2007/07/070716133210.htm Liu C-I, Liu GY, Song Y, Yin F, Hensler ME, Jeng WY, Nizet V*, Wang AH*, Oldfield E*. A cholesterol biosynthesis inhibitor blocks Staphylococcus aureus virulence. Science 2008; 319:391-394. *share senior authorship McNamara CW, Zinkernagel AS, Macheboeuf P, Cunningham MW, Nizet V, Ghosh P. Coiled-coil irregularities and instabilities in Group A Streptococcus M1 are required for virulence functions. Science 2008; 319:1405-1408. Rius J, Guma M, Schachtrup C, Akassoglou K, Zinkernagel AS, Nizet V, Johnson RS, Haddad GG, Karin M. NF-kB links innate immunity to the hypoxic response through transcriptional regulation of HIF-1. Nature 2008 454:807-811.

Yao H, Shu Y, Wang J, Brinkman BC, Haddad GG. Factors influencing cell fate in the infarct rim. J Neurochem. 2007 Mar;100(5):1224-1233.

If you’d like more details about research throughout Rady Children’s and UCSD, we’d be happy to send you a copy of the Rady Children’s/UCSD Physicians Annual Report. For your copy, please contact Jodi Bengel at (858) 966-8536.

Rady Children’s Magazine 33

LOOKING AHEAD All parents who bring a child to Rady Children’s share one common question: “Do you have everything you need to help my child?” At the very core of Rady Children’s Mission is the dedication to always answer, “yes.” Every hour of the day. Every day of the year. Although our country is facing uncertain economic times, Rady Children’s stands ready – and able – to continue to take care of every child who comes to us and to offer every child excellence in medical care. The Hospital’s best-ever operating performance in fiscal year 2008 is providing a solid foundation for this current fiscal year as we continue our commitment to meet the needs of the community, now and in the future. We remain committed to completing our new Patient Care Pavilion (see pages 36-37). The Pavilion construction is on time and on budget and is absolutely crucial to our ability to meet the needs of the children and families in our care.

From great to world-class. We look forward, as well, to continuing our work to take Rady Children’s from the great hospital we are today to a world-class institution – one of the top children’s hospitals in the United States. The future of Rady Children’s is filled with possibilities. Our Board has approved moving forward on planning a new research facility right on the main campus that will strengthen our commitment to research and innovation. At the same time, we are committed to teaching the next generation of pediatric healthcare professionals and to continue our efforts to attract and retain the best and brightest physicians, nurses and staff. And it’s all for one simple reason: This is what’s best for the children of our region. At Rady Children’s, we take pride in our present accomplishments. We also are looking to the future so that we may always answer: “Yes, we do have everything we need to take care of your child.”

34 Rady Children’s Magazine

Philanthropy and Volunteerism Make a difference in the life of a child. There is special joy in knowing that you’ve helped a critically ill child. Our donors and volunteers have – in a real and profound way – touched the lives of the patients and families at Rady Children’s.

Why Your Help Matters Does Rady Children’s really need your support? Yes! As a free-standing, not-for-profit hospital, we rely on community support. We want to ensure that we will always be here to care for the children who need us, reaching new heights in pediatric healthcare. Philanthropy provides: • Life-saving technology and research. • Support for the amazing new Patient Care Pavilion (see pages 36-37). • A safety net for children with little or no private medical insurance. • A healing environment designed to enrich the experience of patients and their families, covering vital programs and services not reimbursed by insurance.

Rady Children’s Hospital Foundation: Financial Overview Designations for Gifts

Types of Gifts

10% 25%

22%

44%

58%

3% 9%

21%

5% 3% PATIENT CARE

INDIVIDUALS

BUILDING

AUXILIARY

TECHNOLOGY

CORPORATE / BUSINESSES

ENDOWMENT

FOUNDATIONS

DISCOVERY

OTHER SUPPORT ORGANIZATIONS

In fiscal year 2008, Rady Children’s Hospital Foundation raised $17,696,840. Of that, $12,625,346 was from cash donations, $4,981,494 represents pledges and $90,000 represents new irrevocable planned gifts.

Rady Children’s Magazine 35

Reaching New Heights Keeping our covenant of hope and healing for children.

R

ady Children’s Hospital-San Diego has embarked on a bold new course to keep its covenant of hope and healing for our region’s children and families and to contribute even more to the practice and science of pediatric medicine worldwide.

It’s a vision that calls for the highest levels of philanthropy and volunteer service ever realized by Rady Children’s. It’s a vision that depends on you. We are proud to share with you our priorities, our goals, and an update of our progress.

Our Priorities Building

Breaking new ground. Reaching new heights. To keep our covenant to care for our region’s children and families through the construction of a new state-of-the-art Patient Care Pavilion.

Discovery

Our commitment: To contribute to the discovery of cures and treatments for childhood disease and injury through research and teaching — making a difference in our region, across the country and around the world.

Technology

Our responsibility: To ensure life-saving technology and equipment are always available for our region’s children.

Patient Care

Our promise: To provide medical care and services for needy children and support critically needed programs that rely on philanthropy.

Our Goal To raise critically needed funds to meet the current and future healthcare needs of the children in our community in these four crucial areas. To learn more about any of these areas or to make a gift, please contact Rady Children’s Hospital Foundation at (858) 966-5804 or visit www.HelpSDKids.org.

36 Rady Children’s Magazine

Building Update Our New Patient Care Pavilion

I

t is more than just a building. It is a promise – the promise of a healthier future for kids. Due to be completed in 2010, our new 279,000square-foot Patient Care Pavilion will help us keep our covenant with our region’s children. And we cannot wait.

Each year, more than 140,000 children are cared for at Rady Children’s or at one of our satellite facilities. This ever-increasing demand has pushed our physical facilities beyond capacity. Without this new Patient Care Pavilion, funded significantly through philanthropy, children may need to go outside our community — to Los Angeles and beyond — to receive care. More than 50 percent of the children cared for at Rady Children’s have little or no medical insurance. The vast majority of these patients are from working families where no private medical insurance is available. Rady Children’s provides safety net care for these children and the most advanced care imaginable when a serious illness or injury occurs.

2007-2010: A Glance Back – A Vision of the Future

History in the making: On December 5, 2007, Rady Children’s broke ground on the new Pavilion, here (from left) with Blair Sadler, President and CEO of Rady Children’s from 1980-June 2006; current President and CEO Kathleen Sellick; Ernest Rady; and our founding Executive Director and CEO from 1954-1980, Richard Johnston.

A bird’s eye view: The Pavilion is progressing on time and on budget. This is a look at the progress in September 2008.

A great future for kids: What the new Patient Care Pavilion will look like when it opens in 2010.

Rady Children’s Magazine 37

sm

Jessica Roel enjoyed a moment in the spotlight at the Children’s Circle of Care Fall Reception in September. Surrounded by her parents and some of the many caregivers who have helped her throughout the years, Jessica shows that, when a family comes to Rady Children’s, they are surrounded – literally and figuratively – by a circle of caring support. When Jessica was born – only 4 lbs., 1 oz. – her doctors struggled to find out why she could not seem to hold down food. When she came to Rady Children’s at age 2, they finally had a diagnosis: Congenital Villous Atrophy, a condition that meant her intestines were unable to process food. Jessica could not eat solid foods or even drink from a bottle. In fact, Jessica was not able to eat solid foods at all until she was 18 years old. The team who helped Jessica came from nearly every area of the hospital: HomeCare, Nursing, Infectious Diseases, 38 Rady Children’s Magazine

Gastroenterology, Allergy and Immunology, Otolaryngology, Pediatric Intensive Care, Social Work, Child Life, Surgical Services, and Emergency Services – all working together to help give a child not just a life, but a lifetime. Children’s Circle of Care is a part of the team, as generosity from this extraordinary group of philanthropists funds equipment, research and family services that are an integral part of this circle. Today, Jessica is a wonderful, independent young woman. She has been free from any sort of feeding tube for many years. She graduated from Point Loma Nazarene University in 2002 and is a professional writer. Her future is filled with promise. Jessica’s story is dramatic and inspiring. But it’s important to know that, no matter how simple or complex the diagnosis, Rady Children’s builds a circle of compassion and hope around every child who comes to us. Children’s Circle of Care’s vision is to ensure that we are there for every child who needs us.

sm

T

he name really says it all: Children’s Circle of Care is a very special group of philanthropists who donate generously to form a ring of support to help the patients and families at Rady Children’s.

Through annual gifts of $10,000 or more, Children’s Circle of Care members support a common mission: To advance the work of pediatric healthcare, research and education to benefit children. Although Children’s Circle of Care membership has international presence (see North American Leadership Conference information, below), it is most meaningful to our members to know that all gifts benefit children right here in San Diego. Children’s Circle of Care ensures that Rady Children’s is ready to help every child who needs us with the finest in medical services and compassionate care.

North American Leadership Conference • Seattle: May 6-8, 2009

C

hildren’s Circle of Care has international importance, as well. Each year, members meet to hear from leading physicians and researchers and to celebrate philanthropy in support of children’s hospitals. The North American Leadership Conference in Seattle in 2009 promises to be an incredible opportunity for our 2008 members. Tom Brokaw is the honorary chair, and the entertainment is always amazing. San Diego members will join with those from other Children’s Circle of Care hospitals to learn more about the difference we make, and to be inspired by the children we help. While our highest attention must be paid to the children in our hospital and – even wider – to our community, we can also take pride that the work we do here will help children across the nation and around the globe.

Founding Sponsors

Rady Children’s gratefully recognizes these North American Leadership Conference and Gala sponsors:

Signature Sponsors Phipps/McCarthy The Ponzio Family RE/MAX International, Inc. Cille and Ron Williams

Silver Sponsors Bard, Rao & Athanas Consulting Engineers, LLC Goldman Sachs The H.N. and Frances C. Berger Foundation

For more information about Children’s Circle of Care, please call Katie Ward at (858) 966-8510.

Rady Children’s Magazine 39

When Ty Tuminello was born in January 2006, he had a mysterious “inborn error of metabolism,” says Dr. Bruce A. Barshop of Rady Children’s Biochemical Genetics and Metabolic Diseases. He was eventually diagnosed with a disorder named guanidinoacetate methyltransferase (GAMT) deficiency. It is treatable with a prescription liquid formula along with a low protein diet. With alteration of his diet and supplementation, he made the transition from an infant who could not raise his head to a happy, normally developing and active toddler.

44 Rady Children’s Magazine

Corporate Support Making compassion company policy. San Diego businesses have always had a heart for children – and for Rady Children’s. And for good reason. Companies find that supporting Rady Children’s increases employee morale, enriches business opportunities and strengthens community awareness. And there are so many ways to get involved. Business and corporations – large and small – can: • Make a direct contribution. • Develop an employee giving program. • Form a walk team for the Shamu & You Family Walk (see below and page 10). • Hold fundraising events. • Sponsor Hospital events. By raising at least $500 a year for Rady Children’s, companies become a part of our Miracle Makers Program, and those contributing $5,000 or more annually are honored as members of our Miracle Makers Council (see pages 46-49). For more information about how your business can take part, call (858) 966-5988.

COSTCO Wholesale: Miracle Millions COSTCO Wholesale has raised millions of dollars since they began fundraising for Rady Children’s – more than $1 million in May 2008 alone. Not only do they sponsor events, such as golf tournaments and business shows and sell miracle balloons, the company matches a portion of all gifts. “Raising funds for Rady Children’s is a special honor for all of us at COSTCO because it truly is a team effort. Everyone – employees and customers – is reaching out to make a difference in the lives of children,” says Bob Hicok, Senior Vice President.

The Second Annual SeaWorld Shamu & You Family Walk for Rady Children’s was a whale of a good time: More than 2,000 participants (nearly triple from last year’s event!) gathered in October to benefit Rady Children’s. Walkers came from every part of our community, including 122 members of the team from presenting sponsor San Diego County Credit Union. Nearly 90 teams helped raise more than $86,000 to help the children and families here at the Hospital.

Rady Children’s Magazine 45

Community Involvement Friends helping friends. It feels so good to know you’ve made a difference in the life of a child. That’s why it’s no surprise that individuals, clubs and groups of friends help raise money for Rady Children’s.

Making Fundraising… FUN! The impact of support on the Hospital is serious, but getting there is the fun part! Events range from bake sales and dance marathons to toy drives. Best of all, community groups love the way events bring everyone closer together, joined in a new spirit of philanthropy that makes everyone feel good! By raising at least $500 a year for Rady Children’s, individuals and community groups also become members of our Miracle Makers Program (see pages 47-49). For more information about how you can help, call (858) 966-5988.

So Many Ways to Help! Here are just a few examples of how members of our community are stepping up to help kids: Max & Jake’s Big Race Max and Jake’s Big Race was started by Jerilyn Hammerstrom and Paula Cook, the mothers of Max and Jake. They were inspired by the care their boys received at Rady Children’s Heart Institute and are grateful for the opportunity to give back. The 2nd Annual Max and Jake’s Big Race 5k Trail Run and 1-Mile Walk will be held on February 22, 2009 at Mission Trails Park. Proceeds benefit Rady Children’s Heart Institute. The 2008 race had more than 500 runners and raised more than $38,000 for the Heart Institute. DS Action DS Action includes parents, grandparents, doctors, educators, registered nurses, social workers and other business professionals interested in improving the quality of life of all people with Down syndrome. DS Action worked to establish the Down Syndrome Center at Rady Children’s (see page 9), where all children with Down syndrome would have equal access to recommended evaluations, referrals and intervention services. Friends of Scott The Friends of Scott Foundation raises funds and offers programs to help children with cancer and their families. They donate arts and craft projects, volunteer to read to patients, and support the parent support group: Lechey Café and the teen support group: SOMBFAB (Some Of My Best Friends Are Bald). They also host the SOMBFAB Prom and made a $150,000 gift to support the Bone Marrow Transplant Playroom and the Wellness Center in the new Patient Care Pavilion (see page 9). Dale Donnelly Memorial Golf Tournament The 5th Annual 2008 Dale Donnelly Memorial Golf Tournament was held on August 21 at the Riverwalk Golf Club to celebrate the life of Dale Donnelly, a friend and icon in the San Diego marine industry. Businesses and organizations partner to raise funds for the H.O.P.E.S. (Hematology/Oncology Parents Extending Support) program in the Cancer Care Center at Rady Children’s.

You can specify that the funds you raise go to a specific area of the Hospital (like all of the wonderful community groups profiled above) OR simply donate to our Patient Care Fund. That means that your gifts go to support the highest and most urgent needs of the Hospital.

46 Rady Children’s Magazine

Rady Children’s Miracle Makers Raising funds. Raising awareness. Raising hope. A partnership between Rady Children’s Hospital Auxiliary and Corporate and Community Development, the Miracle Makers program helps Rady Children’s honor those of you who give so generously of your time and resources. Miracle Makers are individuals, clubs, businesses or even groups of friends who hold fundraising events for Rady Children’s, raising at least $500 annually.

Miracle Makers Council: Going the Extra Mile Can you do more? Miracle Makers who raise $5,000 or more become a part of the Miracle Makers Council and enjoy some extra-special complimentary benefits: • Institutional membership in the Miracle Makers Council. • Invitations to Miracle Makers events and Rady Children’s Annual Meeting. • Mention in Union-Tribune Kids’ NewsDay and Enlace recognition ads. • Rady Children’s Annual Report recognition. • Listing in the credits of annual telethon broadcast. And there’s more. Corporations and organizations that have each raised $15,000 or more annually are honored at our yearly Miracle Makers Gala. Miracle Maker Council Members are shown here in COLOR. Abbott Fund Matching Grant Plan Ace Hardware

Ace Parking, Inc. ACI Sunbow, LLC

American Legion Auxiliary Unit #853 American Legion Post #853 Amgen Pac-Match Gift Program

Barnes & Noble Barona Band of Mission Indians

Brigantine Family of Restaurants Bumbleride, Inc.

Baskin Robbins

AMN Healthcare

Bassett Furniture Direct Bayview Rebels Miracle Makers Ben Ziri Caravan #218 Benchmark Commercial Insurance Services, Inc. Bernstein Global Wealth Management Bill Blass New York

Burger Construction Bycor General Contractors

Adelaide's Florists and Decorators AdoptMe2000 Advanced Bionics Aetna Foundation, Inc. Aetna Giving Campaign

Anesthesia Service Medical Group

Aflac AJ's Playhouse - CHANNEL 933

M.R. Aron Company, Inc.

Anheuser-Busch Companies, Inc. Anshen+Allen

API Software, Inc. ARINC Incorporated

Alignment Express Alliance Bernstein Alliance Bernstein Foundation Fund Allstate Giving Campaign Alpine Squares Altrusa International, Inc. of San Diego American Academy of Child & Adolescent Psych

American Academy of Dermatology

Associated General Contractors of America AT&T Services, Inc. Auntie Anne's Soft Pretzels Auto Anything

Bimbo Bakeries USA

AVID-Mount Carmel High School Ayres Advisors

Blue For Kids, Inc. Blue Ocean Imports Bluewater Pool-Spa Bonita Optimist Club

Az Pac

Bacardi The Bahia Resort Hotel

American Dairy Queen Corporation

Baja Pump USA, Inc. Bakbone Software, Inc. Bank of America Matching Gifts Program Banning, Micklow & Bull, L.L.P.

American Legion Auxiliary Post #149

Barefoot Wine and Bubbly

American Bathtub Refinishers

BioMarin Pharmaceutical, Inc.

The Bishop's School The Blanchard Foundation

Blockbuster Video

Bonsall Petroleum Construction, Inc. Booz Allen Hamilton, Inc. Borders Book Store

Bosa Development California, Inc. The Brees Dream Foundation

Cabrillo Credit Union Café Valley Calico Brands California Coast Credit Union California Credit Union League, San Diego Chapter Capital Growth Properties Cardinal Health

Cardinal Health Foundation Carley Copley's Angels Carlsbad Strawberry Company CarMax Auto Superstores, Inc. Cars 4 Causes Cary & Cary

Casa Blanca Salon and Spa Cass Construction, Inc. Castle/Breckenridge Management, Inc. Casual Crafters Cathedral Catholic High School CB Richard Ellis

Brierton, Jones & Jones, LLP

The Miracle Makers Mission is to encourage, support and recognize individuals, organizations and community groups who demonstrate philanthropy in support of Rady Children’s Hospital-San Diego.

Rady Children’s Magazine 47

Celgene Celmol, Inc. Centara Capital

Charity Ball Charlotte Russe Holding, Inc. Chehab & Friends CHERS Chick-Fil-A

CHIfund Children's Specialists Foundation, Inc. Chula Vista Police Department Church of Latter-Day Saints Redhawk Laurels Circus Vargas

City National Bank Private Banking Services Clark Realty Builders, LLC Clear Channel San Diego CO-OP Financial Services Coast Highway Photography Coastal Die Cutting Cochlear Americas

Cognex Corporation Coldwell Banker, Ocean Beach, Point Loma Community Service Association/SD City Schools

ConAgra Foods Concepts Insurance Consistent Tee Constant Companions In-Home, Inc. Contract Services Control Contractors Cornerstone Machining, Inc.

Corporate Logo Wear Corporate Management Inc.

COSTCO Wholesale The Country Friends, Inc. County of San Diego

DJO, Inc. Domino's Pizza of San Diego The Dale Donnelly Memorial Golf Tournament Dreams Do Come True

Dreyer's Grand Ice Cream DS Action Duke Energy Foundation Dynalectric Company DZ Pharmacy Management, Inc. East County Juniorz East Lake Optimist Club Eastlake Petroleum ECHO of Northrop Grumman ECP Commercial Distribution Electronic Control Systems Eli's Food & Wine Marketplace Employees Charity Organization of Northrop Grumman Energy For Others Escondido Recreation On Track Program Essential Consulting, LLC. Express Personnel Services Extra Point Foundation Farwest Insulation Contracting Favorite J

FBI Recreation Association FedEx Corporation A Few of Our Favorite Things Fidelity National Title

Fitness Together Del Mar Fleming's Prime Steakhouse & Wine Bar

Cubic Corp. CUSO Financial Services

Galderma Laboratories, L.P. Arthur J. Gallagher & Company

Cycle Visions Cymer Inc.

Garden Communities GE Capital Solutions Genentech

General Mills Georgia-Pacific

Del Mar Thoroughbred Club

Girl Scout Troop 6044

Del Sol Deloitte & Touche, LLP Delta Delta Delta Alumnae Chapter San Diego Desert Auto

Glaceau

48 Rady Children’s Magazine

Health Care Group

Heinz North America Hereford Quality Food Products The Hershey Company Hitachi Home Electronics (America), Inc. Hoehn Motors, Inc. Hotel Del Coronado HUGS

Huish Detergent, Inc. Humphrey's by the Bay Hyundai Motor America Ikaria Imperial Beach Fire Department Imperial Capital Bank India Equity Partners Management Subsidiary Infantino, LLC Inland Federal Credit Union

Intero Corp Holdings dba Texas Apt Buyers

Friendship Quilters of San Diego Frost Hardwood Lumber Co. Fuller Ford & Honda

Disguise Divine Pasta Company Dixieline Lumber Home Centers

HD Supply

First Future Credit Union Fish & Richardson P.C.

Credit Union Car Club Credit Unions for Kids Creststone Group Baking Company

Diageo Diageo North America-Arizona Dimon Foods Discount Tire Co., Inc.

The Haunted Trail

The Firehouse Brewing Company

Crafty Productions, Inc. Credit Suisse Securities (USA) LLC

Davidson Communities Davis Elen Advertising Del Mar Jockey and Thoroughbred Club

Harley Owners Group Toy Invasion

Integrated Pain Specialists Integrated Sports Marketing IHOP

Financial 21 Community Credit Union

Foresters Foster Farms Frazee Enterprises Freedom Voice Systems FreeLife International, LLC Friends of Scott Foundation

Cox Communications San Diego Cox Kids Foundation

Grubb & Ellis, BRE Commercial H.G. Fenton Company H2A Architects Hawkins Hawkins Anderson, LLP Haight, Brown & Bonesteel, LLP Halomates Harbor Island Yacht Club

Golden Corral #2415 Golden State Foods Goldman Sachs Asset Management Golf Galaxy Good Guys Ace Home Center Goodrich Rohr Employees' Will-Share Club

Graphic Communications, Inc. The Grand Del Mar Granite Hills High School Grossmont Schools Federal Credit Union

Intuit Foundation Invitrogen Corporation Irell & Manella Foundation

The Irvine Company Irving Hughes Inc. Isabella's Gift Island Staffing Island Tat It's A Love Thing J. H. Cohn LLP

The Jack in the Box Foundation The Jackman Group Jacquelin B Sweats JAX Scaffold Systems, LLC JBM Properties, LLC John Russell Construction

Johnson & Johnson Joy Charlotta Design JTF Enterprises Julez Bryant

JW Floor Covering, Inc. Kay Jewelers KB Toys Viejas Outlet

Keystone Roofing Inc. Killion Industries, Inc.

Kiwanis Clubs of San Diego County KMA Architecture & Engineering Knightsbridge Asset Management, LLC Kobrand Corporation Kohl's Cares for Kids

KPRI 102.1 Kraft Foods L3 Communications Telemetry-West La Costa Canyon Pop Warner Football La Costa Heights Elementary School

La Costena Jumex Sun Vista La Jolla Country Day School La Lace La Mesa Fire Department La Mesa Village Merchants Association La Playa Loving One Another Lakeside Firefighters' Association Lakeside Poultry Ranch

Lapides Asset Management, LLC The Lapin Company Las Manos del Artesano

Las Patronas Laser Clinique

Ledcor Construction, Inc. Legacy Building Services, Inc. Legacy Partners Commercial, LLC Leo Hamel Fine Jewelers

Liam's Fund for Neurosurgery Libs Chiropractic Center, Inc. Lightbulbs Unlimited Lincoln, Gustafson and Cercos

Little Race for Little People Lockheed Martin The Lomas Santa Fe Group Lombardi Contracting Corporation Love's Country Stores & Travel Stops #349 Luce Forward Luce, Forward, Hamilton & Scripps, LLP Lysinski & Associates PC

Macy's Inc. MADCAPS 7th Grade Class Madison Leather

Magnus Construction Marriott Businesses Matt's Caddy Shack

Max and Jake's Big Race MBE, A UPS Company

McCarthy Building Companies, Inc. The McGraw-Hill Companies - Employee Giving

MD7, LLC MediciNova, Inc.

Medicis Global Services Corporation MedImpact Healthcare Systems, Inc. Meketa Investment Group Mellace Family Brands Menish Productions Merck Partnership for Giving Merrill Lynch & Co. Foundation, Inc. Microsoft Giving Campaign and Matching Gifts

Mesa Distributing Co., Inc. Midland Credit Management

Mike's Hard Lemonade The Mikey Show - Rock 105 FM The Paul Miller Company

Milton's Miramar Federal Credit Union

Mission Federal Credit Union Mission Valley Self Storage

Mission Ventures Mog and Rue Moms in Motion

Money Mailer, LLC Montclare Painting and Decorating Montgomery Middle School

Morrison & Foerster Mount Carmel High School Muscleman of Technology, LLC Musicians On Call

Musick, Peeler & Garrett National Charity League, San Dieguito Chapter

Navy Federal Credit Union NBC 7/39 Nestle - Power Bar

New Cars, Inc. New City America

Porsche Club of America, San Diego Region Positive Adventures, LLC Pout Poway Valley Collision, Inc.

Powertrip, LLC

San Diego Wine Guild San Diego Wine Storage San Elijo Middle School San Miguel Firefighters

Procopio, Cory, Hargreaves & Savitch, LLP

San Pasqual Band of Mission Indians

Project Linus/Altrusa International-San Diego Provide Commerce Prudential California Realty Pueblo Bonito Ocean Front Resort & Spa

Santee Lakeside Rotary

QUALCOMM Incorporated Quick Dry Flood Services

Scrapbook Royalty Scripps Memorial Hospital Mothers of Twins

Quiring & Associates

Nicholas-Applegate Capital Management Nielsen Construction Ca., Inc.

Rancho Financial Inc. Rangoni Firenze Shoes

Nordson Corporation North Island Credit Union Northern Lights Coffee Company Northern Trust Bank

Raymert Press, Inc. RCP Block and Brick, Inc.

Odwalla, Inc. OliverMcMillan, LLC Origin Properties, LLC Ortho-McNeil Pharmaceutical Pacific Athletic Club Pacific Carpets

Pacific Marine Credit Union Palermo's Panda Express Panda Restaurant Group, Inc. Par Electric Park Haven Apartments Francis Parker School Pedal to the Park Lance Pelky & Associates, Inc. Pellegrino Properties

Penny Arcade, Inc. Pepsi Perini Building Company

Pernod Ricard Peter Barron Stark & Associates, Inc.

Pfizer La Jolla Pharmaceutical Research & Manufacturers of America A.L. Pheasant, Inc. Phi Delta Epsilon Phonak Hearing Pillsbury Winthrop LLP PIMCO Pink Lagoon

Pioneer Porsche Point Loma Credit Union

The San Diego Union-Tribune

Prematic Service Corporation, Nevada Presidential Limousine Price Enterprises, Inc.

Newman's Own, Inc. Next Level Sailing Neyenesch Printers, Inc.

Notre Dame Academy NRG Music and Productions Nth Generation Computing, Inc. OC Design Ocean Shores High School Virtual Enterprise

San Diego Police Department 911 Dispatchers San Diego Sockers San Diego Unified School District

Rady Children’s Hospital Auxiliary The Ralphs/Food 4 Less Foundation

Sara Lee Food and Beverage Schreiber Scott and Cronin CPAs Scott Cameron Golf Designs

Scripps Ranch High School SD Medical Federal Credit Union SDA Security San Diego Gas & Electric

SeaWorld of California, Inc.

Teammates for Kids Foundation TGIC/RMDC of Arizona Thurgood Marshall Middle School

The Thursday Club Time Warner Cable Tobin Landscaping, LLC Todd Family Trust

Touching Lives Holiday Program Tower Glass, Inc. Trappings TRE Treasured Accessory

Tri West Healthcare Alliance Triple-S Power Cleaning Turner & Maasch

Tyson Foods The US Grant Hotel UBS Securities Union Bank of Calif. Employee Workplace Campaign

Union Bank of California Foundation Unique Treasures by Alice United Nurses of Children's Hospital US Bancorp Foundation

SEIU/NAGE Local 5000 Charitable Foundation

USA Federal Credit Union

RE/MAX Associates

RE/MAX International RE/MAX RB Ranch & Beach Reckitt Benckiser

Sempra Energy SENTRE Partners, Inc. Shalom Baby of San Diego

Valero Energy Corporation

A.O. Reed & Company Regency Realty Group, Inc. Regents Bank

Sigma Alpha Epsilon - CA Alpha Gamma Sigma Chi Fraternity – SDSU

Regional Law Enforcement Teddy Bear Drive Relaxx Dry Cleaning

RFT Management and Development Rice Hall James & Associates, LLC Rite Aid Corporation Ro Ultratec USA, Inc. Rohr School Roll Giving Rotary Club of Del Mar

SkinMedica, Inc. Skyway Luggage The SoCo Group Inc. Sons of the American Legion #149

Sony Computer Entertainment America Sorrento Valley Children's Center Souplantation

Southern Wine & Spirits of AZ/CA

USA Freestyle Karate Valhalla High School Van Kampen Investments, Inc. Vanier Industries Verizon Foundation Matching Incentive Program ViaSat

Victory Pharma, Inc. Viejas Enterprises Vista Optimist Club Foundation, Inc. Vocational Training Institutes, Inc. Wachovia Corporation

Wal-Mart Stores and SAM'S Club of San Diego and Imperial Counties

Southwest Airlines Spinner Toys and Gifts Sprites Starbucks StarRise Creations Step Up Theatre

Wall Décor

Steren Stiefel Laboratories, Inc.

Wellpoint Foundation/Assoc. Giving Campaign

Saks Fifth Avenue Salomon Construction, Inc.

Subway

Wells Fargo Bank

Sullivan Moving and Storage

San Diego Association of Health Underwriters San Diego Chargers San Diego Charity Cup San Diego County Credit Union

Summers Laboratories, Inc.

Sunnyside School - Kids Giving to Kids

Wells Fargo Community Support Campaign Wescom Credit Union's WeCare Foundation

Sunroad Enterprises

The Westin Horton Plaza

Sunset Parking Services, LLC Supercuts

Willis M. Allen Company Wilson Creek Winery & Vineyard Wiz Marketing XE Capital Management, LLC

Round Table Pizza Roy's Restaurant San Diego Russell's Jewelers S.M.I Santourian Manufacturing, Inc. Sacred Heart Academy of Ocean Beach

Sahale Snacks

San Diego Fire-Rescue Station 10 San Diego Fire-Rescue Station 17 San Diego Harley Davidson

Sushi On A Roll

Sutherland Management Group

San Diego Ice Arena

SweetPea Baby, Inc.

San Diego Junior Theatre

Sycuan Band of Kumeyaay Indians

San Diego Metropolitan Credit Union San Diego National Bank San Diego Padres

Tali G Talking Rain Beverage Company

San Diego Police Department

WaMu, now part of Chase WaMu, now part of Chase, Employee Giving Program Watson Wyatt and Company

WD-40 Company

Young's Market Company, LLC YTB Travel Network Zale UTC

Zouvas Investment Group

Tarantino Gourmet Sausage Tasta Group, Inc. Taybear, Inc.

Rady Children’s Magazine 49

When you meet 2-year-old Amelia, what you notice is that she likes to wear mismatched shoes. What you don’t see is that she was born with a rare congenital heart defect called Truncus Arteriosus. She had openheart surgery at Rady Children’s when she was 5 days old. She spent six weeks in the Neonatal Intensive Care Unit (NICU) recovering while her twin sister, Sophia, who had a less serious heart defect (Tetralogy of Fallot), was at home. Sophia had her own open-heart surgery at 5 months. Both girls are doing well – with energy to spare. Only the scars that run the length of their small chests hint at their medical history. For more on Rady Children’s Heart Institute, please see page 25.

50 Rady Children’s Magazine

Rady Children's Hospital Auxiliary Rady Children’s Hospital Auxiliary actually began a full year before the Hospital opened its doors in 1954. Ever since, this dedicated group of volunteers has strived to help Rady Children’s meet each new challenge.

Units: The Heart of the Auxiliary Keeping the beat of this diverse group is the Auxiliary’s 22-unit membership, which spans all San Diego County and Southern Riverside. Every year, the units work independently on an amazing array of creative fundraisers and advocacy issues. Together, they orchestrate citywide events, such as Union-Tribune Kids’ NewsDay, Fantasy on Ice and a winter gala. The Auxiliary is also a vital component of the Miracle Makers program (pages 47-49), helping groups of all sizes to reach out and help kids.

Rady Children’s Hospital Auxiliary Board of Directors 2007-2008 *President *President Elect *Secretary *Treasurer *Education VP *Fund Development VP *Membership VP *Unit Council VP *Ways & Means VP *Miracle Maker VP Past President & Auxiliary Gala Co-Chair Advocacy Assistant Treasurers

Norma Rascon de Yates Angela Wachtmann Joyce Knott Lynn Nunez Harriet Bossenbroek Judy Carlberg Eileen Edwards Kathy Sullivan Natalie Emerson Heidi DeBerry

Auxiliary Meeting Coordinator Chaux Talk Leadership Development Hospital Liaison Historian Publicity/Website Director Fantasy on Ice Union-Tribune Kids’ NewsDay Auxiliary Gala Co-Chair

Marilyn Tobin Margaret Todd Meighan Gallavan Kierstin Cahill Sherry Beckhart Karin Whiteley Janis Takahashi Rina Podolsky Karen Haak Catherine Harman Sooz Noll Michele Prescott Maureen Sage

Rady Children’s Hospital Auxiliary Board of Directors 2008-2009 *President: *President Elect *Secretary *Treasurer *Education/Advocacy VP *Membership VP *Unit Council VP *Ways & Means VP *Miracle Maker VP *Communications VP Past President Auxiliary Gala Assistant Treasurer New Unit Coordinators Auxiliary Meeting Coordinator Leadership Development Hospital Liaison Historian Fantasy on Ice Chair Union-Tribune Kids’ NewsDay Chair

Angela Wachtmann Michele Prescott Maureen Sage Lynn Nunez Rina Podolsky Sherry Beckhart Sue Fledderjohn Harriet Bossenbroek Karen Haak Karin Whiteley Norma Rascon de Yates Rowena Treitler Meighan Gallavan Natalie Emerson Heidi DeBerry Amanda Ecoff Kathy Sullivan Pam Caldwell Joyce Knott Vivienne Adibi Jo Evans

* Executive Committee

*Executive Committee

Norma Rascon de Yates 2007-2008 President

Angela Wachtmann 2008-2009 President

For more information on joining Rady Children’s Hospital Auxiliary, please call (858) 966-5887 or visit www.rchsd.org.

Making a Real Difference: 2007-2008 Areas of Designation Funds raised by Rady Children’s Hospital Auxiliary helped patients and families throughout the Hospital. In fiscal year 2008, the nearly $7 million raised was designated to the following areas: Autism Intervention Center • Cancer Care Center • Chadwick Center for Children and Families • Craniofacial Division Diabetes/Endocrinology Division • Ernest Hahn Critical Care Center • Heart Institute • Highest and Greatest Needs Orthopedics Division • Pediatric Cancer Research • Trauma Department Rady Children’s Magazine 51

Charity Ball Raising more than $400,000 to benefit Surgical Services at Rady Children’s, the 99th Anniversary Charity Ball lived up to its theme. It was, in a word, “Unforgettable.” We honor those who led this extraordinary event: The 99th Anniversary Charity Ball Committee Phyllis Snyder – Ball Chairman

Leslie Dupree

Kathy Kim

David Siccardi

Clarice Perkins – Co-Chairman

Mari Fink

Wendy Ledford

Michael Taylor

Dulie Ahlering

Chris Fontana

Roxi Link

Marilyn Tobin

Carol Berardino

Joy Frye

David Nelson

Carrie Vilaplana

Betsy Boaz

Nancy Garrett

Chris Ong

Sandy Walrod

Betty Brayshay

Alison Gildred

JoEllen Parsons

Nell Waltz

Deni Carpenter

David Gillig

Marcia Piper

Carol Webb

Carol Chang

Bonnie Hage

Lauren Root

Cathy Webster

Liz Copley

Susan Houser

John Rush

Judy Willoughby

Marilyn Cornwell

Amy Huth

Marilyn Sawyer

Jane Wilson

Carol Damon-Scherer

Linda Katz

Mary Schrubbe

Penny Dokmo

Debi Kelly

Kathleen Sellick

Charity Ball Turns 100! The 100th Anniversary Charity Ball, “A Centennial Celebration,” will be held Valentine’s Day, February 14, 2009. It’s quite an anniversary for San Diego’s longest-running and most prestigious philanthropic event. This is a formal, black-tie event held each year at the Hotel del Coronado, attended by more than 800 generous San Diegans each year. This year, rather than having one Chair, the event will be hosted by all the past Chairmen. Look for all the details in our next issue of Rady Children’s Magazine.

52 Rady Children’s Magazine

Volunteer Services Volunteers give the most precious gift of all: Their time. Rady Children’s is proud to honor this year’s Volunteers of Excellence – and every volunteer who made the time to help the children and families at Rady Children’s.

For 37 years, Carmen Ratner has stood in the Orthopedics Department hallways ready to help. Even now, at age 86, as one of Rady Children’s longest-serving active volunteers, she’s there for families in need.

Volunteers of Excellence President’s Award Jane Peterson The Tom Lafleur Junior Volunteer Award Eric Rubenacker and Sarah Shearer

She stood ready during a recent clinic when 10-year-old patient Francisco Varela needed her.

New Volunteer Mallory Highhouse

“He wants to know when he can play soccer again.” Ratner translates the boy’s question for the physician, and then delivers the bad news: Not yet. Though the exchange seems simple, the medical staff and the patient are both delighted Francisco and his family understand.

Volunteers of Excellence Joshua Luskin, Erin Yeates and Terry Powell Team Spirit Award Karen Collica, Michelle Chen, Sasha Ducey and Kia Gaither Corporate and Community Volunteers National Charity League – del Norte Chapter.

Carmen, a native San Diegan, grew up bilingual and learned medical terms from her physician mother, who trained in Guadalajara. Her family was deeply involved in the community especially the arts, she played viola for San Diego County Symphony. With her husband, Seymour, she raised three daughters, and after they left home she started volunteering full-time, she explains, “I wanted something to keep me busy.” Rady Children’s honors Carmen for her selfless gift to the cause of healthier children.

Rady Children’s Volunteer Services Department Mission The Mission of the Volunteer Services Department is to enhance and support the services of Rady Children’s Hospital through the contributions of trained volunteers in a caring environment. Volunteer Services is dedicated to providing the highest possible quality of service while at the same time respecting the dignity, individual differences and cultural diversity of our patients, families, staff and the communities we serve.

Volunteers donated 41,284 hours of time in fiscal year 2008. That’s the equivalent of a $774,901 gift to Rady Children’s (based on the dollar amount established by the Independent Sector).

Rady Children’s Magazine 53

The Peckham Family at the opening of 2006-2007 Fantasy on Ice. Nancy Peckham (center) is flanked by her two sons, Michael (left) and Bruce. At the far left is Michael’s wife, Lisa, and their two younger children, Bradley and Amy. Eldest son, Matthew (below) was away at college.

Gifts that Inspire

The Peckham Family The Peckham family has been a part of the Rady Children’s family for many years. Now, with their latest gift, the Peckham legacy will touch the lives of new generations of children and their families. Gifts from the Peckman family totaling $10 million will support cancer and blood disorder programs and construction of the new Patient Care Pavilion. In recognition of the Peckham family’s extraordinary generosity, the Hematology/Oncology program at Rady Children’s will be named the Peckham Center for Cancer and Blood Disorders. The Peckham family spans four decades of caring for and about the children of San Diego, beginning with Nancy and Peter Peckham’s involvement in 1966. But perhaps their most personal experience occurred when their grandson, Matthew (left), was diagnosed with cancer in 1994. Matthew is now a junior at Santa Clara University. Matthew’s parents, Michael and Lisa, have made an incredible difference in their own right. Lisa founded the Parent Liaison program in our Cancer Care Center and later began H.O.P.E.S. (Hematology/Oncology Parents Extending Support) and Michael has become a dedicated leader through his role as a trustee of Rady Children’s Hospital Foundation Board. Beyond providing needed funds, the Peckham family’s gifts represent an enduring commitment to bettering the lives of children. They are a shining example of what makes up the heart and soul of Rady Children’s.

54 Rady Children’s Magazine

Gifts that Inspire

The Viterbi Family “What makes Andrew and Erna Viterbi so remarkable is their profound dedication to making the world a better place for children,” says Kathleen Sellick, President and CEO of Rady Children’s. “The Viterbis continue to demonstrate that their passion for children truly comes from the heart. We are deeply grateful for their generosity.” This generosity has come in the form of $6 million in gifts from the Viterbi Family Foundation of the Jewish Community Foundation of San Diego that will help fund construction of the new Patient Care Pavilion at Rady Children’s and development of the new Hematology/Oncology Care Center. In recognition of this generous philanthropy, the outpatient clinic in the new Hematology/Oncology Care Center will be named in honor of the Viterbi family. The co-founder of Qualcomm, Inc., Andrew J. Viterbi is perhaps best known for inventing the Viterbi Algorithm, the basis of all of today’s cell phone communications. Last year, Dr. Viterbi received the National Medal of Science, the nation's highest honor for science and technology. Dr. Viterbi married Erna Finci in 1958. Among other commonalities, they shared a dramatic entry into a new land. During World War II, Erna, her brother and parents fled Sarajevo, Yugoslavia as the German army invaded. The Finci family escaped to Parma in Italy, then Switzerland until they finally set out for California in 1950. The couple has three children, Audrey, Alan and Alexander. “Erna and I hope that, by contributing to the construction of the Patient Care Pavilion and the Cancer Care Center at Rady Children’s, we can improve the lives of the children in our community who need it most,” says Andrew, “Those who require expert medical care to not only survive, but thrive.”

56 Rady Children’s Magazine

Gifts that Inspire

Fresh Start

Teenager Bryttany Armstrong got – in every way – a Fresh Start last year. Born with a rare syndrome that severely disfigured her face and skull, Bryttany was ready for a new beginning. She was ready to bloom. It is for children like Bryttany that Fresh Start Surgical Gifts volunteer physicians and medical professionals open their hearts. They offer topnotch medical care, regardless of the patient’s ability to pay, to free kids from the physical shadows of disease, abuse, birth defects or traumatic accidents. Now, Fresh Start itself is blossoming. Through a gift of nearly $2 million, the non-profit has teamed with Rady Children’s to operate a clinic near the Hospital. Leading Fresh Start’s efforts is prominent plastic surgeon Dennis Nigro, M.D. Bryttany’s transformation began with her first surgery at age 5 with Steven Cohen, M.D, Rady Children’s Director of Craniofacial Services and chief of Plastic Surgery. By age 14, her condition had worsened, so Dr. Cohen enlisted Fresh Start. Her surgery was long and complex, her recovery painful and extensive. What didn’t take long at all was for Bryttany to blossom. She’s eager to start high school and to be, as she says, “Just one of the girls.” 58 Rady Children’s Magazine

Gifts that Inspire

The Hervey Family Matthew Hervey happily gives away money to nonprofits in San Diego. He considers it his duty to his parents’ legacy and an honor to have the opportunity to give away millions through the Hervey Family Fund at The San Diego Foundation. Since 2000, Hervey has helped steer support to hundreds of local nonprofits – including $1 million to Rady Children’s new Patient Care Pavilion. “When you give your own money, you have invested more of yourself. You make sure your goals, and what you’ve worked for, become reality,” says Hervey. His parents, Jean Jessop Hervey and her husband, prominent attorney James Edgar Hervey, raised their five children to understand that when people invest time and money into their community, it strengthens the social fabric for everybody. “It wasn’t that Mom sat us down at the table and said ‘You’re going to learn a lesson,’ it was instead seeing what they did as an example for what social responsibility is and can achieve,” explains Hervey of his late parents’ legacy. One of the Fund’s newest investments in the region’s future is a $187,000 grant in conjunction with Price Charities to Rady Children’s for a healthcare workforce training program. The program will build a job pipeline connecting students from City Heights with career opportunities in healthcare, and at the same time fulfill the great need of all San Diegans for quality medical workers in the future. “These are grants that have a direct impact on the lives of kids,” says Hervey of his family’s many gifts to the Hospital, “That’s the advantage of giving while you’re still alive, you get to see the results and share the joy and celebration of completion.” Jean Jessop Hervey and James Hervey passed on their passion for philanthropy (Photo courtesy of San Diego Historical Society).

60 Rady Children’s Magazine

Gifts that Inspire

Patti and Doug Holmes For Patti and Doug Holmes, their recent $500,000 donation to the new Patient Care Pavilion is really a gift to their children. “It’s exciting to see the new building going up and to know that all of our kids – my kids and everybody’s kids – are going to be taken care of because of all this progress,” says Patti, a member of Children’s Circle of Care along with her husband, Doug, President and CEO of Holmes Land Development Corporation.

Gillian Copley and Mackenzie Holmes

When Rady Children’s Pavilion opens in 2010, the Hematology/Oncology Playroom and Classroom will be named in celebration of their daughters, Stephanie, 15, an accomplished equestrian, and Mackenzie, 12, a talented actress. The family first experienced the monumental work that goes on inside the Hospital in the mid90s through the brave battle against leukemia fought by Stephanie’s first best friend, Carley Copley (the two girls are pictured here together in 1995). Carley ultimately lost her fight, but her name and her inspiring spirit live on through Carley’s Magical Gardens and other vital parts of the Hospital that aid and inspire others. For the families lucky enough to have known and loved Carley, the legacy of her friendship remains vibrant in their lives. Stephanie and Mackenzie remain great friends with the Copley family and their children (pictured above are Gillian Copley and Mackenzie in 2007). The Holmes family continues to devote their time and energy as well to the future of all San Diego’s children. Doug sits on the Foundation Board and serves as Stewardship Committee Chair. “We are absolutely passionate about the place,” he says.

Carley Copley and Stephanie Holmes

62 Rady Children’s Magazine

Gifts that Inspire

The California Endowment The story is horrifying: Masked gunmen kicked down the door and kidnapped Michelle Renee and her 7-year-old daughter, Breea. And, even when they were rescued, the nightmare continued. Although the legal process marched on, Michelle and Breea were held hostage by the emotional trauma. It was nine days later when a counselor from the Chadwick Center for Children & Families at Rady Children's happened to see Michelle in a hallway, and they finally got the help they needed. “The Chadwick Center saved my life,” says Michelle. “I will shout from the rooftops about what Chadwick has done for my life.” Michelle and Breea’s story shows just why work of the Chadwick Center is so vital, and why the $111,060 grant from The California Endowment is so important. The funds will allow the Chadwick Center to expand access to quality mental health and child and family services by using evidence-based practices. The Center already has a strong foundation with its comprehensive web-based forum, the California Evidence-Based Clearinghouse for Child Welfare (www.cachildwelfareclearinghouse.org). The Clearinghouse was worth investing in, explains Gwen Foster of the California Endowment, “They wanted to take it to the next level, to really put this information into the field.” Now with their attackers imprisoned, Michelle has become a public speaker and victims’ advocate. Her book, Held Hostage, highlights the life-saving aid they received from the Chadwick Center and is being made into a movie.

64 Rady Children’s Magazine

Fantasy on Ice Now through Sunday, January 4, 2009 The Ice Rink at Horton Square is presented by the Auxiliary to benefit Rady Children’s Cancer Care Center. Hours: 10 a.m. to 10 p.m. daily (except Thanksgiving and Christmas Day). Contact the Auxiliary at (858) 966-5887 or visit www.fantasyonice.kintera.org

100th Anniversary Charity Ball: A Centennial Celebration Saturday, February 14, 2009, Hotel del Coronado Hosted by its former Chairmen, San Diego’s longest-running and most prestigious philanthropic event, is celebrating its 100th anniversary on Valentine’s Day. Contact Dawn Ivy at (858) 966-7793 or [email protected]

11th Annual Women’s Financial Symposium and Luncheon Thursday, March 5, 2009, Hyatt Regency La Jolla at Aventine This symposium, presented by Rady Children’s Hospital Auxiliary Mabel Jessop Endowment Fund, focuses on financial and investment issues of particular interest to women. Contact the Auxiliary (858) 966-5887 or email: [email protected]

Miracle Mile of Quarters Saturday, May 2, 2009, 7 a.m. – all day, in front of Rady Children’s Join the Kiwanis Clubs of San Diego County for their annual red-carpet event, including pancake breakfast and barbecue lunch. Open to the public. Contact Dawn Ivy at (858) 966-7793 or [email protected]

Miracle Makers Gala June 6, 2009, 6 p.m. to midnight, Hilton San Diego Bayfront The Miracle Makers Gala is a San Diego tradition – a great party for a great cause.

The Faces of Rady Children’s The Heart of a Hospital This special Annual Report edition of Rady Children’s Magazine provides a picture of our last fiscal year – the facts and figures, activities and accomplishments, medicine and mission. But the real story of Rady Children’s is told in the faces of the children who come here, children like Amelia and Sophia, both of whom had open-heart surgery before they were 6 months old. Looking at their shining faces, it’s easy to understand why we do what we do. The best people, the latest advances, excellence in care. At the very heart of Rady Children’s, there is a child – and the knowledge that to save a life at Rady Children’s is to give a child a lifetime. For more about Amelia and Sophia, please see page 50. For more about Rady Children’s Heart Institute, please see page 25.

Non-Profit Organization U.S. Postage PAID San Diego, CA Permit #22

3020 Children’s Way MC 5005 San Diego, CA 92123-4282

If you receive an extra copy of Rady Children’s Magazine, please call Donor Services at (858) 966-7749 so we can reduce our mailing costs.